Africa
Mauritius (Republic of)
Lupus Alert
As the world prepares to mark the ninth World Lupus Day observance on 10 May 2012, we are pleased to inform you about the various activities organised by Lupus Alert to increase public awareness and understanding of Lupus. Activities have already started since the beginning of May:
1. College students visited the Lupus Alert Drop-In Centre / Library to learn more about Lupus and how it affects young people.
2. On Sunday 6th May an educational programme has brought together a panel of Lupus patients and their families with a team of basket ball players from the Malherbes Harlems Club to discuss the various aspects of Lupus, how it affects the daily life of a Lupus patient and how to make this painful and misunderstood disease better known to the public.
3. A basket ball match will be played between the Malherbes Harlems Basket Ball Club and players from Le Mauricia College where two students are Lupus sufferers.
4. Presentation of the World Lupus Day 2012 poster to the media. The posters are already displayed in all public hospitals, private clinics, secondary and tertiary institutions...etc
5. Several radio and tv programmes with doctors and Lupus patients have been organised.
6. A couple from Madagascar has also join the Lupus Alert team for Lupus awareness in Mauritius and Madagascar.
7. As in previous years, we have invited as many people as possible to text or email a message on the 10th of May to keep the awareness of Lupus ongoing.
8. Lupus Alert 2000 - 2012: A slide show of its activities and exceptional achievments are being shown to all visitors at the Lupus Alert Drop-In / Library Centre
9. Lupus Alert is proud to inform all Lupus Groups around the World that for her extraordinary work in disease awareness and disease advocacy Dalilah Kalla, a lupus patient from Mauritius, was awarded the 2011 Junior Chamber International Outstanding Young Person of Mauritius and is among the 2011 Junior Chamber International Ten Outstanding Young Persons of the World (JCI TOYP Program) recipient in the category of Humanitarian and/or Voluntary Leadership. Past recipients of these JCI National Awards include such well known personalities as Orson Welles, Howard Hughes, Nelson Rockefeller, John F.Kennedy, Henry Kissinger, and many more.
Contact person: Dalilah Kalla, Spokeperson and Secretary of Lupus Alert
Address: 1st Floor, Arcades Bholah, Royal Road, Rose Hill, Mauritius
Tel: +230 464 8276 / +230 465 9899 / + 230 795 9971
Email: lupusalert@hotmail.com
Website: www.lupusmauritius.com
Asia
Bangladesh
Lupus Foundation of Bangladesh
Theme: World Lupus Day 2012
Event Location: BIRDEM Auditorium, Shahbag, Dhaka, Bangladesh.
Date & Time: Thursday, 10 May 2012. From 9:15 am to 1:30 pm
Event Details: The event includes following key activities:
World Lupus Day Rally
Awareness Lecture for Patients, Families, People and Media
Professor Syed Atiqul Haq, Chairman, Dept of Medicine, BSMMU
Sharing Stories of Challenges and Hopes by Lupus Patients
Participants: Approx 150 Invitees that include Patients, Families & Well-wishers, Physicians & Researchers, Media,
Corporates, Government and Development Partners
Invitation attached (gif)
Event Chaired by:
Professor M N Alam
President, LFB and Bangladesh Rheumatology Society
Organized by: Lupus Foundation of Bangladesh (LFB)
Contact: Farhana Ferdous, Secretary General, LFB
Email: LupusFoundationBD@gmail.com
Please find a copy of the World Lupus Day Poster translated in Bangla. We are printing 2,000 copies and expecting to publicize in key locations.
Indonesia
Care For Lupus – SDF Indonesia
This Year, Care For Lupus – SDF Indonesia conducts several activities for World Lupus Day 2012, which have started from November 2011 and will finally be peaked at the commemoration of World Lupus Day on May 5, 2012.
The theme for this year is NEVER GIVE UP!
The central Program lies on The Care for Lupus – SDF Awards 2012.
Under this Program, 3 Award Categories will be delivered for : Research Sponsorship, Writing Competition and Lifetime Achievement.
35 Nominees from several universitiesin Indonesia and individual submitted proposals for research sponsorship.
This year in addition to the research sponsorship for herbal supplement, we add one categoty reserach “All About Lupus” to improve quality of life of lupus patients.
We will select 3 winners out 26 propasal for herbal supplement and 2 wineers out of 9 proposal for “All About Lupus “
On the Writing Competition, the committee will also select 3 winners out of 10 articles on the topic of Lupus that have been published on the media. On the Lifetime Achievement category, the committee will select individuals, doctors and institutions who have dedicated his/her/their life to support people with lupus and their families, promote public education and awareness about Lupus and strive for a call to action for government to increase their financial support for lupus research, awareness and patient services.
The other series of activities include Lupus Goes to School and Campus (for Lupus awareness and education), Lupus Road Show for Care for Lupus SDF Awards and Kids Lupus patients Gathering.
The closing of the NEVER GIVE UP - WLD 2012 activities will be a live event on May 5, 2012. The agenda for this event includes: Free medical lupus consultation; Lupus Awareness adn Education Talk show; Art Performance: “Beautiful Indonesia”; Book Launching: “Sunrise Serenade” and “Luppies Diary”; Bazaar and Care for Lupus SDF Awards Presentation.
Click here to see the English poster (jpg)
Email : end@cbn.net.id
Website : www.syamsidhuhafoundation.org
Australia
Australia
Lupus Australia, Queensland Inc.
Celebrating on the day at The Lupus Shop
1/24 Station Road Indooroopilly
Email: support@lupus.com.au
Website: www.lupus.com.au
Europe
Lupus Europe
For the first time ever, LUPUS EUROPE will be providing artwork for all 21 member countries (23 member groups) for use in WLD projects. Using the theme Make Lupus Work, the artwork consists of A3 poster with photos and status of lupus patients throughout Europe along with top-line statements taken from the on-line Survey: Living with Lupus – Career/Work Situation. An A4 poster has the same text with photos of delegates to LUPUS EUROPE Annual Convention in Copenhagen September 2011. Further artwork is 148x148 being text only. The three items will all be personalised for each member group and sent electronically as pdf. An A4 leaflet (Word) explains the project and gives suggestions for the use of the posters. A further A4 leaflet What is Lupus? Gives a brief outline of lupus for the countries which may find such information of use. The poster will be on the Home Page of LUPUS EUROPE website and member groups are requested to post it on their national and regional websites also on social networks e.g. Facebook and Twitter. See the A3 poster and text (pdf). The text could be reproduced as a postcard and sent to Lupologists, Health Ministers, MPs etc to highlight the impact that lupus can have on career/work.
LUPUS EUROPE will also have a WLD page on its website where events in the member countries/groups can be highlighted. Member countries are also asked to take part in the multi-text project which has been so successful throughout Europe the past two years. Learn more about the multi-text project (pdf).
Contact: Yvonne Norton - chair@lupus-europe.org
Website: www.lupus-europe.org
Belgium
Belgian CIB-league
World Lupus Day will take place on 10th May itself, in hospital Gasthuisberg in Leuven. Between 11 am and 17 pm there will be members present of the CIB-league with an informationstand. We are there to answer the question of patients and visitors. We will also hand out leaflets of our illness and organisation.
There is also a poster of World Lupus Day available, the meaning is to put it on a place where many people pass, or to give it to our doctor, pharmacist, ... Lupus should that day be noticed in the whole of Flanders!
For more information, please visit http://www.cibliga.be/
Association Lupus Erythémateux
This year, we will be present in four hospitals in every part of the South of Belgium : two stands in Brussels (hopital Erasme and Cliniques Universitaires Saint-Luc), one in Mons (west) at CHU Ambroise Paré and one in Liège (East), at CHU Sart Tilman. Between 9 and 16, we will inform people, both patients and visitors and provide them leaflets or flyers about the association and the lupus. Please follow the link : http://www.lupus.be/spip.php?article127
Email: presidente@lupus.be
Cyprus
Cyprus League Against Rheumatism
We will celebrate the lupus day as follows
- Workshop about the power of mind-positive,negative thoughts and a presentation of yoga including excercise.it will be held at the HILTON PARK HOTELin NICOSIA CYPRUS,on 12th of May,11.00-13.00. AVENE will give practical advice for skin care
- a new leaflet with practical information and advice concerning life with lupus
- articles in the local press as well as participation in radio and tv programmes
Website: http://www.rheumatism.org.cy/
Email: cyplar@cytanet.com.cy
Denmark
Lupus DK
Make LUPUS Work is the theme for the LUPUS EUROPE campaign for WLD 2012, as:
Lupus has life changing consequences when only 52 % are in employment. For about 28% the change happens within a year after diagnosis. Time of diagnosis is in average at 37 years of age, 9 out of ten are women.
These are some of the results from the patient-led survey Lupus European Online – LEO, bringing attention to the detrimental effect lupus has on the career/work situation of many people with lupus in Europe.
In Denmark, the World Lupus Day will focus on this important aspect of living with lupus and the programme offers topics like: Student and work life, better knowledge of own disease and how new and improved treatment options will influence education and career choices. The final topic of the day will be a presentation on a special “Know your lupus” – educational programme planned, designed and organized by the patient organization for the patients.
Learn more about the World Lupus Day program (pdf)
Website: www.sle.dk
Email:
kirsten@lerstrom.dk
Estonia
Estonian Rheumatism Association
LUPUS DAY IN ESTONIA – „MY LIFE WITH LUPUS“
The purpose of the activities on World Lupus Day is to improve the coping of lupus patients and their family members by distributing relevant and necessary information.
We want to inform health care workers about the essence and prevalence of lupus, the progression of the disease as well as the role of family and support people as well as the existence of a support group.
We are going to issue a special edition of the Estonian Rheumatism Association monthly e-newsletter dedicated to the subject of lupus.
This will include information on the risk factors and prevalence of lupus in Estonia, the 10 years of work by the lupus support group, the World Lupus Day, the seminar to be organised in the autumn, and on creative therapies for lupus patients.
In addition, we are going to issue the booklet „My Life with Lupus“. The booklet gives an overview of the essence of the disease, its diagnosing and treatment as well as offers advice for better coping with the disease.
We are going to distribute the monthly e-newsletter as well as the booklets to patients and health care workers. The electronic versions are available on out websites.
Additional information:
Estonian Rheumatism Association
Eesti Reumaliit
Email: reuma@reumaliit.ee
Website: www.reumaliit.ee
Estonian Youth Rheumatism Association
Eesti Noorte Reumaliit
Email: luupus@reumaliit.ee
Website: http://eestinoortereumaliit.com/
Germany
Lupus Erythematodes Selbsthilfegemeinschaft e.V.
3rd German Lupus Day on Science, Dresden
Conference on SLE, including awarding this year's researching prize of the Lupus Foundation Germany
Invited to this medical symposium are all lupologists, rheumatologists and other professionals.
May 11 - 12, 2012
More information: http://www.lupus-stiftung.de/
Wonder of Arts II, Bayreuth
Benefit concert in aid of the Lupus Foundation Germany
May 12, 2012 at 19:00 h
More information
Balloon campaign "40,000 balloons for 40,000 lupus patients in Germany"
throughout Germany, different days
LupusCrossing
Our famous postcard project in cooperation with www.postcrossing.com started for WLD 2009 and still continues.
About 325 butterfly cards have been received from all over the world to raise awareness for lupus and to demonstrate support for lupus patients.
For more information, please click here and here
Information desks
throughout Germany, different days
Email: simone.mueller-pretis@lupus-rheumanet.org
Web site: www.lupus.rheumanet.org
Hungary
Gabriella Schopper Hungarian Lupus Group
Lupus Day in Hungary, 2012
On June 23, 2012, we are planning to go to a nearby Safari Park in Budakeszi. We invite all of our family members and our friends who feel like spending together a nice and pleasant day in the nature with many talks and much experience. If the weather is gloomy and rainy, we are going to the Tropicarium zoo park in one of Budapest’s suburban district. Our aim is just to have fun together when forgetting our illness. We are preparing some tea and mineral water to everyone as usual.
Information: http://www.vadaspark-budakeszi.hu/index.php
Information: http://www.tropicarium.hu/?a=welcome&lang=en
We organize this event in June because in May we have another programme: we are having a Barbecue party at Szegvár, in a countryside town where the chair of our group, Zoltan Purgel will be preparing lunch to us. The town itself is also offering many interesting pastime activities: sightseeing tour by a farm-wagon, boating and water-cycling.
Date and Time of Events: 13th May and 23th June at 10 am. Location: Budakeszi
Website: http://www.lupusz.hu/
Contact: Anna Janecsko
Email: anna@lupusz.hu
Ireland
Lupus Group Ireland
For World Lupus Day, Lupus Group Ireland will:
Unveil and go live with their brand new interactive website. This site will have 21 individually designed pages, created by a very talented web designer exclusively for Lupus Group Ireland. This website will be interactive providing 24/7 support for Lupus Patients. There will be stories from patients and family members of patients, there will be information on symptoms, diagnosis, medications and most importantly a question forum on flash chat. The designs are one of a kind created exclusively for the Group.
We also intend to unveil our Android Application which will be downloadable from an app store and from our website. This application will be designed in a game format, it will allow people to progress further by answering Lupus related questions. This app will be an innovated, fun and new way to learn about the condition Lupus. This app will be named "Lupie".
Date and Time of Event: 10th May at 2pm
Contact: Jessica O' Bryan
Number: 353860795263
Email: info@lupusgroupireland.com
Italy
Lupus Italy
Bologna: May 12
World Lupus Day Celebration
Policlinico S.Orsola Malpighi
National Congress of the Italian Lupus Association
Firenze: May 19
Florence Lupuc Clinic meets the patients
Catanzaro, Benevento: May 5-6
Sassari: May 19
Napoli: May 15
Email: lestoscana@gmail.com
Website: www.lupus-italy.org
Netherlands
Nationale Vereniging LE Patienten
Activity: NVLE Patiëntencongres lupus/APS
When: Saturday, May 12th
Time: 11.00 – 17.00 hrs.
Place: Partycentrum Het Vechthuis in Utrecht
More info: www.nvle.org
To celebrate World Lupus Day, the NVLE association organizes a big conference for lupus patients on Saturday the 12th of May. This day is taken care of down to the last detail.
Several speakers, patients and professionals, will throw light on the developments in the treatment of lupus. Also at this day, the NVLE will announce the winner of the NVLE Award 2012. This is a prize for researchers and clinicians who contributed to research on or improvements in the treatment of lupus.
Spain

Spanish Lupus Federation (FELUPUS)
As every year, the Spanish Lupus Federation (FELUPUS) commemorate WLD celebrating the XI Edition of our National Congress on May 4/5th.
This year will be located in the north of Spain in Santander and it has been co-organized with the Lupus Association of Cantabria
In this activity collaborate our 23 members as well as many doctors specialized in lupus, and we'll have more that 300 attendants. During two days, we will talk about different topics, and we’ll end the event with a closure dinner for speakers and attendants
Leisure activities are prepared for Saturday. They are very appreciated by attendants because increase personal contacts and friendship.
For more information, click here to see the brochure (pdf)
In addition of this event, local groups celebrate date with many activities and workshops.
We continue publishing our magazine “LUPUS ESPAÑA”, available in our web, and other publications like guides, leaflets and books for children.
More info in www.felupus.org or contact felupus@felupus.org
Asociación de Lupus de Almería (A.L.AL.)
Comentaros que las actividades organizadas con motivo del día internacional de Lupus (10 de mayo) en Almería (España) son :
- 9 de mayo, mesa informativa sobre la enfermedad de Lupus en el Centro Médico de Especialidades Bola Azul (Almería).
- 10 de mayo, mesas informativas sobre la enfermedad de Lupus en el paseo de Almería .
- 12 de mayo, asistencia a la reunión de pacientes del 8th Internacional Congress on Autoimmunity (Granada).
- 19 de mayo, mesas informativas sobre la enfermedad de Lupus en la localidad de Adra (Almería).
More info: http://www.alal.es/
Lupus Galicia
We'll celebrate our day, May 10th with the installation of information desks arround Galicia and the celebration of the XIV Congress of Lupus in Galicia. We'll be as well answering questions about Lupus on internet:
All associations claim an increase in both public and private funds for medical research on lupus, targeted education programs to healthcare professionals, patients and the public in general and recognition of the importance of Lupus. In this sense, the University of Santiago has an open line of research on lupus via the Rheumatology Service, Hospital of Santiago de Compostela, in the Clincial Hospital of Santiago has been created a bank of blood samples of Galician patients with lupus. On the other hand in the Clinical Hospital of Coruña is conducting a study entitled "National Lupus Registry" with samples of affected patients in Coruña City
For more information: please email agal@lupusgalicia.org or visit www.lupusgalicia.org
United Kingdom
Lupus UK
- At 12:30pm our members will email or text the following message to 10 people they know who do not have lupus – “Today is World Lupus Day please forward this message to 10 more people and help spread the message throughout the world Thank you. LUPUS UK Reg. Charity Nos. 1051610, SC039682 www.lupusuk.org.uk”
- Many schools across the UK will be holding events to promote World Lupus Day. Participating schools have been sent posters to display and a bookmark for each child that they can colour in. Hopefully the children will read their bookmark, then take it home and show it to their parents – two generations learning about lupus through one action.
- All LUPUS UK members have received posters and stickers to put on mail going through the postal system.
- Our followers on Facebook and Twitter will be changing their profile pictures to that of a Butterfly to help raise awareness in a viral campaign. The idea is to pique people’s interests and make them wonder why their friend has a butterfly on their profile. This will raise discussions about lupus.
- We will also have many members holding smaller events all across the country.
- The Spring edition of News & Views (national magazine) has given 1½ pages to promoting WLD and the Summer edition will carry articles on the ways that WLD was marked throughout the UK.
Contact: Chris Maker (Director) – e-mail: Chris@lupusuk.org.uk
Website: www.lupusuk.org.uk
Hibbs Lupus Trust
The Hibbs Lupus Trust will be promoting World Lupus Day through our facebook & twitter profiles whilst working with local businesses & supporters to raise awareness and funds through a range of activities on Thursday 10th May.
Visit our website www.hibbslupustrust.org/world-lupus-day for more information and to get involved
St. Thomas Lupus Trust
The Joy of Living Concert
Thursday May 10th (World Lupus Day)
A celebration of all things lovely in life (and World Lupus Day!!). We often get overwhelmed by illness, sadness and general day to day worries so come for a respite from all of this and have a relaxing evening of great, fun entertainment. Suitable for all the family! Bring anyone along that needs a bit of cheering up as it's guaranteed to work!
Guy’s Chapel, Guy’s Hospital. Gates for access in St. Thomas Street. Close to London Bridge tube station.
Concert commences 7pm, doors open 6.30pm. Concert approximately an hour and a half long.
Performances include: Dan Clews, Laura Cusack, Barbara Kelly & Carla Maney, Jimmy Lam, Pupils of St Peter’s School Eaton Square, Magdalene Chan & ZHL Strings.
Readers include: Lynn Faulds Wood & Annie Fowler
Limited numbers so please get tickets early. Tickets in advance from our shop here. Adults: £6.00 Child (ages 3 to 16) : £3 (including postage). Children under 3 are free. Tickets are nonrefundable.
On the door (cash only and subject to availability) Adults: £9 Child: £4
Contact: Angie Davidson
Website:www.lupus.org.uk
Email: fundraising@lupus.org.uk
North America
Canada
Lupus Foundation of Ontario
The Niagara Falls Illumination Board has approved the illumination of the American & Canadian Falls on May l0th to honour World Lupus Day.
Niagara Falls (American, Bridal Veil and the Canadian Horseshoe) will be illuminated in the Canadian lupus colours of red/white during the following times:
9:l5 – 9:30 PM
10:15 – 10:30 PM
Illumination of Niagara Falls began 144 years ago to honour the visit of the Prince of Wales. On May l0th, the Niagara Falls Illumination Board will honour the five million people who have been diagnosed with lupus. This initiative will shed light upon the ‘least known major disease – lupus’.
Lupus Foundation of Ontario would like to acknowledge the special contribution of Mr. Scott Whitwell, Niagara Parks Commission, who arranged this illumination on our behalf.
For further information, please contact:
Lupus Foundation of Ontario
294 Ridge Road North
Ridgeway ON LOS 1NO
800-368-8377
www.vaxxine.com/lupus
Serving Ontario, Canada since l977
Lupus SK Society Inc.
- Lupus SK has a World Lupus Day announcement with a link to the World Lupus Day website on our website www.lupussk.com
- We participate in Lupus Canada's "Walk For Lupus" (in May to coincide approximately with World Lupus Day) with walks in eight locations in Saskatchewan - Hudson Bay, Meadow Lake, Moose Jaw, Prince Albert, Regina, Saskatoon, Wadena, and Weyburn. More information and online registration is available at www.walkforlupus.ca
- We include the World Lupus Day logo on our walk posters and on our website.
- World Lupus Day will be announced in the upcoming issue of our "Saskatchewan Lupine" newsletter.
- Her Honour, the Honourable Vaughn Solomon Schofield, Lieutenant Governor of Saskatchewan, provided us with a personal World Lupus Day Message, which will be published in the upcoming issue of our newsletter and displayed at our events.
- The Honourable Lynne Yelich, Member of Parliament for the Blackstrap constituency (Saskatchewan) and Minister of State (Western Economic Diversification) has prepared a press release about World Lupus Day to be released on May 10, and which will be published in our newsletter.
- World Lupus Day will be acknowledged in the Saskatchewan Legislative Assembly on May 10.
- World Lupus Day announcement letters have been sent to all Saskatchewan Members of Parliament and Members of the Legislative Assembly.
United States
Lupus Foundation of America
May is Lupus Awareness Month! On behalf of the Lupus Foundation of America (LFA), we invite you to join us and Band Together for Lupus Awareness to improve the understanding of lupus, an unpredictable and sometimes fatal autoimmune disease that affects millions of people.
The LFA has many activities taking place nationwide throughout the month of May to raise awareness of lupus, and encourage others to do the same. We have developed a number of tools that are ready for your use and free of charge to support you in your own awareness efforts.
There are many ways you can Band Together for Lupus Awareness:
- Distribute purple wristbands to friends (available for sale at www.shoplupus.org)
- On World Lupus Day on May 10th, tell 10 people about lupus and ask them to give $10 to the LFA by texting LUPUS to 80888; contributions will help the LFA raise awareness, expand education programs, and advance research. Click here for more details
- Post a Web banner on your Web site or blog linking to www.lupus.org or Lupus Awareness Month Web site
- Sign the World Lupus Day Awareness Pledge and commit to doing at least one thing to raise awareness this May
- Sign up to join LFA’s Walk for Lupus Now in your community
Click here to download the tools to help you Band Together for Lupus Awareness. For more ideas on how you can get involved during Lupus Awareness Month, please visit www.lupus.org/awareness.
Arizona
Yuma Support Group
Sponsor: Lupus Foundation of America, Inc.
May 5, 11:00 a.m. MST
Contact facilitator, Terri Jones at lpjones246@aol.com or (928) 782-5079 for more information including meeting location.
Prescott Support Group
Sponsor: Lupus Foundation of America, Inc.
May 15
For more information, please contact facilitator, Terri Baldic, at prescottsupport@lupusaz.org or call (928) 848-6061.
Phoenix Metro Support Group
Sponsor: Lupus Foundation of America, Inc.
May 26, 1:00 p.m. MST
For location details, please contact Marie Slife, support group facilitator, at slifemarie@yahoo.com or (602) 334-7384.
Arkansas
Grand Opening and Lupus Cut-a-thon
Sponsor: LFA, Arkansas Chapter and Joni's You'nique Image
May 10, 9:00 a.m.
Joni's You'nique Image - 1112 Vine Street Batesville, AR
Come join us to raise awareness of lupus. $10 haircuts, $2 food plates, silent auction, and raffle benefit for LFA, Arkansas Chapter
For more information, please call 501-525-9380 or email lupusarkhs@direclynx.net
Walk for Lupus Now - Hot Springs
Sponsor: LFA, Arkansas Chapter
May 19, 8:00 a.m.
Mit-America Park Hot Springs, AR
Join the Lupus Foundation of America (LFA) Walk for Lupus Now® to bring us one step closer to finding a cure!
Register online, call 501-525-9380 or email lupusarkhs@direclynx.net for more information
California
Rialto Support Group (Bilingual English/Espanol)
Sponsor: Lupus Foundation of America, Inc.
Location: The Julia Palms Clubhouse. 245 East First Street
Date: Monday, May 1st
Time: 6:00 -7:30 PM (PDT)
Please call to confirm attendance beforehand. Erlinda at 909-754-8392 or Sybil at 909-746-5375.
Alameda Lupus Support Group
Sponsor: Lupus Foundation of America, Inc.
Location: 2431 Mariner Square Drive
Date: Wednesday, May 2nd
Time: 6:30-8:00 PM (PDT)
Please email the facilitator, Nanette Stewart, to confirm meetings beforehand at nanettestewart@gmail.com
Upland Support Group
Sponsor: Lupus Foundation of America, Inc.
Location: 974 W. Foothill Blvd, Upland
Date: Monday, May 7th
Time: 6:30 -8:30 PM
Please contact Carol Mannion at cmannion@gmail.com for more info.
Roseville Support Group
Sponsor: Lupus Foundation of America, Inc.
Location: Sierra Pointe, 5161 Foothills, 1st Floor
Date: Tuesday, May 8th
Time: 1:00 - 3:00 PM (PDT)
For information, please call Myra Stephenson at 916-722-6980 or email myraforavon@surewest.net
Sacramento Support Group
Sponsor: Lupus Foundation of America, Inc.
Location: Sutter General Hospital- Conference Room C
Tuesday, May 8th
Time: 6:30 - 8:00 PM (PDT)
For more information, please call Shauntay Davis at 916-893-9554 or at shauntayd@hotmail.com
San Bernardino Support Group
Sponsor: Lupus Foundation of America, Inc.
Location: San Bernardino Community Hospital, 1800 Western Ave, meeting is in the solarium
Date: Tuesday, May 8th
Time: 7:00 -8:00 PM (PDT)
Please contact Misti Lair to confirm beforehand at 909-874-9257 or mlair8@yahoo.com .
Loma Linda Support Group
Sponsor: Lupus Foundation of America, Inc.
Location: Loma Linda University, Faculty Medical Offices Room 3925
Date: Thursday, May 17th
Time: 5:00 -6:00 PM (PDT)
Please contact Misti Lair to confirm meeting beforehand at 909-874-9257 or mlair8@yahoo.com .
Redondo Beach Support Group
Sponsor: Lupus Foundation of America, Inc.
Date: Thursday, May 17th
Time: 6:00 - 7:30 PM (PDT)
For location information and to confirm the next meeting, please call Mary at 310-375-3275.
Lupus Health and Wellness Symposium
Sponsor: LFA, California Office
June 2, 11:00 a.m. - 1:00 p.m.
El Dorado Neighborhood Library - 2900 North Studebaker Road Long Beach, CA 90815
How to improve the quality of your life through diet, low impact activity and stress management.
Cost: Free
To register or for more information, please call 562-467-8994 or email hernandez@lupus.org or gray@lupusorg
Colorado
Walk for Lupus Now - Denver
Sponsor: Lupus Foundation of America, Inc.
May 20, 9:00 a.m.
Central Park/Stapleton
Join the Lupus Foundation of America (LFA) Walk for Lupus Now® to bring us one step closer to finding a cure!
Register online , call (877) 910-9779, or email walk@lupus.org for more information
Connecticut
Walk for Lupus Now - Trumbull
Sponsor: LFA, Connecticut Chapter
May 6, registration opens at 9:00 a.m.
Trumbull Mall, Trumbull, CT
Join the Lupus Foundation of America (LFA) Walk for Lupus Now® to bring us one step closer to finding a cure!
Register online , call 860-269-6240, or email office@lupusct.org for more information
LFA, Connecticut Chapter Advocacy Day
Sponsor: LFA, Connecticut Chapter
May 7, 10:00 a.m. - 12:00 p.m.
Capitol Building - Room 310, Hartford, CT
For more information, call 860-269-6240, or email office@lupusct.org
Walk for Lupus Now - West Hartford
Sponsor: LFA, Connecticut Chapter
May 20, registration opens at 9:00 a.m.
West Hartford, CT at Blue Back Square
Join the Lupus Foundation of America (LFA) Walk for Lupus Now® to bring us one step closer to finding a cure!
Register online , call 860-269-6240, or email office@lupusct.org for more information
May Awareness Campaign
Sponsor: LFA, Connecticut Chapter
May 1 - May 30
Get your purple streaks/feathers from participating salons in efforts to help spread lupus awareness!
Price may vary depending on salon
For more information, please email cgagliardi.events@gmail.com or call 860-269-6241.
Delaware
Dover, DE Support Group Meeting
Sponsor: LFA, Philadelphia Tri-State Chapter
May 1, 6:00 p.m. - 8:00 p.m.
Bayhealth Medical Center: 640 S. State Street Conference Room GF 3&4 Dover, DE 19901
Cost: Free
For more information, call 215-517-5070
Vivir Con Lupus: Learn from the Experts Educational Teleconference
Sponsor: LFA, Philadelphia Tri-State Chapter
May 5, 10:00 a.m. - 11:00 a.m.
Cost: Free
Register online , call 215-517-5070 for more information
Walk for Lupus Now Delaware Countdown Event at Iron Hill Brewery
Sponsor: LFA, Philadelphia Tri-State Chapter
May 7, 11:00 a.m. - close
Iron Hill Brewery & Restaurant Riverfront Wilmington - 620 Justison Street, Wilmington, DE 19801
Join us to Count Down to the Walk for Lupus Now Delaware, and 20% of your food receipt will be donated to the WFLN DE fundraising total!
Contact Arielle Bernstein for more information about partnering for this event, or to request vouchers. Please share the vouchers with your family, friends and coworkers.
For more information, please visit www.walkforlupusnowdelaware.org , call 302-622-8700, or email abernstein@lupustristate.org
Walk for Lupus Now Delaware Countdown Event at Grotto Pizza Locations in New Castle County
Sponsor: LFA, Philadelphia Tri-State Chapter
May 8, 4:00 p.m. - 9:00 p.m.
Join us to Count Down to the Walk for Lupus Now Delaware, and 20% of your food receipt will be donated to the WFLN DE fundraising total! Vouchers will be accepted at multiple locations in New Castle County:
1819 Pennsylvania Avenue |
2015 Concord Pike |
280 College Square |
45 East Main Street |
1200 Pulaski Highway |
Contact Arielle Bernstein, Community Development Coordinator, for more information about partnering for this event, or to request vouchers. Please share the vouchers with your family, friends and coworkers. For more information, please visit www.walkforlupusnowdelaware.org , call 302-622-8700, or email abernstein@lupustristate.org
Walk for Lupus Now Delaware Countdown Event at Grotto Pizza Locations in Kent and Sussex Counties
Sponsor: LFA, Philadelphia Tri-State Chapter
May 9, 4:00 p.m. - 9:00 p.m.
Join us to Count Down to the Walk for Lupus Now Delaware, and 20% of your food receipt will be donated to the WFLN DE fundraising total! Vouchers will be accepted at multiple locations in Kent and Sussex Counties:
102 Silicato Way |
36 Rehoboth Avenue |
Grand Slam |
26090 Shoppes at Long Neck |
22925 Sussex Highway |
793 Garfield Parkway |
Contact Arielle Bernstein, Community Development Coordinator, for more information about partnering for this event, or to request vouchers. Please share the vouchers with your family, friends and coworkers. For more information, please visit www.walkforlupusnowdelaware.org, call 302-622-8700, or email abernstein@lupustristate.org
LFA, Philadelphia Tri-State Chapter Living Well with Lupus Chat (Telephonic Support Group)
Sponsor: LFA, Philadelphia Tri-State Chapter
May 10, 7:30 p.m. - 8:30 p.m.
Telephone Support Group
Residents of Pennsylvania, South Jersey, and Delaware are invited to join in our monthly telephonic support group meeting.
Please register online . Toll-free dial-in information will be emailed to a few days before the call. You may also call our Chapter office at 866-517-5070 or email info@lupustristate.org to register for the Chat
Educational Program TBA at the Wilmington Support Group Meeting
Sponsor: LFA, Philadelphia Tri-State Chapter
May 12, 10:30 a.m. - 11:30 a.m.
Aldersgate United Methodist Church - 2323 Concord Pike Wilmington, DE 19805
Check back on www.lupustristate.org , call 866-517-5070, or email info@lupustristate.org to find out the details about the Title and Topic of the program.
Cost: Free
Living With Lupus: Learn From the Experts Educational Teleconference
Sponsor: LFA, Philadelphia Tri-State Chapter
May 15, 7:00 p.m. - 8:00 p.m.
Teleconference
Living With Lupus: Learn from the Experts, presented by Donald Thomas, MD, FACP, FACR, CCD, is part of this series for people with lupus to learn more about successfully managing their symptoms and disease.
Cost: Free
Please register for this free event online . Toll-free dial-in information will be emailed to participants a few days before the program. For more information, please call 866-517-5070 or email info@lupus.org
Put On Purple Day!
Sponsor: LFA, Philadelphia Tri-State Chapter
May 18 all day
Turn your community purple by promoting a Put On Purple Day in your workplace, school, or community!
Download the Put On Purple Starter Kit to get more details on how you can organize a Put On Purple Event or Promotion in DE, South New Jersey, or Pennsylvania.
Educational Program TBA at the Newark Support Group Meeting
Sponsor: LFA, Philadelphia Tri-State Chapter
May 30, 7:00 p.m. - 8:00 p.m.
Christiana Hospital Room 1100: 4755 Ogletown Stanton Road, Newark, DE 19718
Check back on www.lupustristate.org , call 866-517-5070, or email info@lupustristate.org to find out the details about the Title and Topic of the program.
Cost: Free
Living Well With Lupus Delaware
Sponsor: LFA, Philadelphia Tri-State Chapter
June 2, 10:00 a.m. - 12:00 p.m.
Christiana Hospital Room 1100: 4755 Ogletown Stanton Road, Newark, DE 19718
Our signature educational program brings together a medical expert and a panel of individuals living with lupus to discuss ways to live well or better with lupus!
Cost: $5 per person (by May 23rd); After May 23rd, $10 per person. Scholarships are available; a written request should be made in writing as soon as possible.
Register online, call 302-622-8700 or email Arielle Bernstein, Community Development Coordinator at abernstein@lupustristate.org for more information.
TENTATIVE PROGRAM SCHEDULE
10:00 am Registration and Continental Breakfast
10:30 am Physician Presentation
11:10 am Panel Discussion
12:00 pm Closing
District of Columbia
DC Lupus Summit
Sponsor: LFA, DC/MD/VA Chapter
May 5, 9:00 a.m. - 3:30 p.m.
National 4-H Youth Conference Center - 7100 Connecticut Ave., Chevy Chase, MD
Join us for a comprehensive lupus event that provides participants with information on lupus treatment updates, tips to manage lupus, and resources to navigate one's health.
Cost: Free
Register online or email patientservices@lupusdmv.org .
Parking, metro and shuttle bus information is provided below:
Parking: Free parking will be available at the venue, with limited disabled parking available. If you will be requiring a disabled parking space, please email Amina Gilyard at agilyard@lupusdmv.org . The building is wheelchair accessible and disabled attendees can arrive at the front of the building for easy ramp access
Metro:
To National 4-H Youth Conference Center:
Take the Red Line to Friendship Heights Metro Station (towards Shady Grove) From Friendship Heights, take Metrobus L8 or Ride-On #1 to the National 4-H Youth Conference Center
From National 4-H Youth Conference Center:
Take Metrobus L7 or L8 or Ride-On #1 or #11 toward Friendship Heights (heading South on Connecticut Avenue) Follow instructions at the Friendship Heights Metro Station for points in Washington, D.C., Maryland and Virginia
Shuttle Bus
Shuttle bus service will be provided by LFA, DC/MD/VA from the Friendship Heights metro station to the Summit location starting at 8:45a.m. and running every 15 minutes until 10:00 a.m.
Lupus: Learn from the Experts Series- Topic: Vivir Con Lupus
Sponsor: LFA, DC/MD/VA Chapter
May 5, 10:00 a.m.
Teleconference
Es una introducción sobre los conceptos básicos del lupus para el recién diagnosticado o cualquiera que lo necesite. La información médica precisa sobre el lupus, sus síntomas, tratamientos, y técnicas de afrontamiento.
Cost: Free
Register online, call 202-787-5380, or email patientservices@lupusdmv.org for more information
Explaining Lupus to Your Family and Friends
Sponsor: LFA, DC/MD/VA Chapter
May 8, 6:00 p.m.
Greenbelt Baptist Church - 101 Greenhill Road, Greenbelt, MD 20770
When having lupus it can be difficult to talk to others about it, learn to share your feelings openly with your family and friends!
Cost: Free
Register online, call 202-787-5380 or email Amina Gilyard at patientservices@lupusdmv.org .
World Lupus Day Awareness
Sponsor: LFA, DC/MD/VA Chapter & Urban Chic Boutique
May 10, 10:00 a.m. - 7:00 p.m.
Chic Boutique - 1626 Wisconsin Avenue, Washington, DC 20007
Urban Chic Boutique is turning purple for World Lupus Day! Come and check out the store's purple window and stop in, shop, and enjoy a dessert.
Cost: Free
Register online, call (202)787-5384 or email Brian Wachtel at bwachtel@lupusdmv.org
Lupus: Learn from the Experts Series - Topic: Living with Lupus
Sponsor: LFA, DC/MD/VA Chapter
May 15, 7:00 p.m.
Online Teleconference Webinar
An introduction to effective management and basics of lupus for the newly diagnosed or anyone who needs it. Current, medically accurate info on lupus, its symptoms, treatments, & coping techniques.
Cost: Free
Register online, call (202) 349-1163 or email patientservices@lupusdmv.org
Lupus Update
Sponsor: LFA, DC/MD/VA Chapter
May 19, 10:00 a.m.
Sinai Baptist Church - 1615 3rd St. NW., Washington, DC 20001
Receive the latest update on lupus news.
Cost: Free
Register online, call (202) 787-5381 or email Amina Gilyard at agilyard@lupusdmv.org
The Spring Festival
Sponsor: LFA, DC/MD/VA Chapter
May 19, 10:00 a.m.
Brown Middle School - 4800 Meade St. NE, Washington, DC 20019
Level Up Affiliates is hosting The Spring Festival, a local event featuring entertainment,music,raffles, giveaways, vendors and kid's activities in support of LFA-DMV.
Cost: $5 per person at advance cost until May 18., $10 per person at the door and free for children under 12.
Register and/or pay online, call (202) 787-5384 or email Brian Wachtel at bwachtel@lupusdmv.org
The first 50 people to register will recieve a free gift at the event!
For additonal inquiries about purchasing table space or volunteering, email luaffiliates@live.com .
Explaining Lupus to Your Friends and Family
Sponsor: LFA, DC/MD/VA Chapter
May 19, 10:30 a.m
Shady Grove Adventist Hospital Weinchel Education Center - 9901 Medical Center Drive, Rockville, MD
This workshop will help you boost your confidence and teach you how to share your lupus story with loved ones.
Cost: Free
Register online, call (202)-787-5380 or email Amina Gilyard at patientservices@lupusdmv.org
Lupus Night at Nationals Park
Sponsor: LFA, DC/MD/VA Chapter
May 19, 7:00 p.m.
Nationals Park - 1500 S. Capital Street SE Washington, D.C. 20003
Join the Lupus Foundation of America, DC/MD/VA Chapter at an exciting Lupus Awareness Month event as we celebrate a successful DC Walk and launch details of our MD Walk! The Nationals will be playing the Orioles that night, so come root for your favorite team in this rival matchup!
Cost: Lower Level - Outfield Reserved - $18; Mezzanine Level - Scoreboard Pavilion - $16
Buy tickets online, call 202-787-5384, or email bwachtel@lupusdmv.org for more information.
17th Annual Health, Wellness & Benefits Fair
Sponsor: LFA, DC/MD/VA Chapter
May 24, 9:00 a.m. - 2:00 p.m.
1108 Jefferson St., Washington, DC
Visit our LFA DC/MD/VA booth, we will be providing support, information and resources for those living with lupus and their family and friends.
Cost: Free
To register, call (410) 363-3560 or email Eva Gaskins at egaskins@lupusdmv.org
Florida
Walk for Lupus Now - Tampa
Sponsor: Lupus Foundation of America, Inc.
May 6, 5:00 p.m.
Lowry Park Zoo - 1101 West Sligh Avenue Tampa, FL 33604
Join the Lupus Foundation of America (LFA) Walk for Lupus Now® to bring us one step closer to finding a cure!
Register online , call (877) 910-9779, or email walk@lupus.org for more information
Put on Purple: 110 Tower Building Lighting
Sponsor: LFA, Southeast Florida Chapter
May 10
110 Tower - 110 S.E. 6th Street
The 110 Tower, the largest office building in downtown Fort Lauderdale, will be lit purple in observance of World Lupus Day on May 10, 2012
For more information, please visit http://www.lupusfl.org/awaremth.htm , call 561-279-8606, or email info@lupusfl.org
The Miami Tower Puts On Purple
Sponsor: LFA, Southeast Florida Chapter
May 10 All Day
Miami Tower - 100 SE 2nd St Miami, FL 33131
The Miami Tower, an icon on the Miami-Dade skyline, will be lit purple in observance of World Lupus Day on May 10, 2012
For more information, please visit http://www.lupusfl.org/awaremth.htm , call 561-279-8606, or email info@lupusfl.org
World Lupus Day Awareness Rally
Sponsor: LFA, Southeast Florida Chapter
May 10, 6:00 p.m. - 8:00 p.m.
110 Tower - 110 S.E. 6th Street Fort Lauderdale, FL 33301
Join others affected by lupus and invited members of congress and local officials as we come together to raise awareness and light South Florida purple.
Cost: Free
For more information, please visit http://www.lupusfl.org/awaremth.htm , call 561-279-8606, or email info@lupusfl.org
CityPlace In West Palm Puts On Purple
Sponsor: LFA, Southeast Florida Chapter
May 10 - May 14, all day
City Place Fountain - 700 S. Rosemary Avenue West Palm Beach, FL 33401
CityPlace, the premier shopping, dining and entertainment destination in Palm Beach County and in the center of Downtown West Palm Beach, will light its famous fountain purple in observance of World Lupus Day on May 10, 2012
Cost: Free
For more information, please visit http://www.lupusfl.org/awaremth.htm , call 561-279-8606, or email info@lupusfl.org
Walk for Lupus Now - Hollywood
Sponsor: LFA, Southeast Florida Chapter
May 19, check in begins at 8:00 a.m., Walk begins at 9:00 a.m.
T.Y. (Topeekeegee Yugnee) Park - 3300 N. Park Rd. Hollywood, FL 33021
Be part of the Lupus Foundation of America's WALK FOR LUPUS NOW® in South Florida and help raise critically needed funds and awareness for this unpredictable and life-altering disease.
For more information and to register, please visit www.walkforlupusnowflorida.com , call 561-279-8606, or email walk@lupusfl.org
Design Center of the Americas (DCOTA) Puts on Purple
Sponsor: LFA, Southeast Florida Chapter
May - all month
DCOTA - 1855 Griffin Rd Dania, FL 33004
DCOTA, the largest design and office campus of its kind, will light up purple in May in observance of Lupus Awareness Month
For more information, please visit our Web site , call 561-279-8606, or email info@lupusfl.org
Georgia
2012 Augusta Living with Lupus Symposium
Sponsor: LFA, Georgia Chapter and MCGHealth
May 19, 12:45 p.m. - 5:30 p.m.
Georgia Health Sciences University Alumni Center, 919 15th Street, Augusta, GA 30912
Join us for our 3rd Annual Living with Lupus Education Symposium in Augusta. Presentations from Georgia Health Science University medical experts in: Rheumatology, Dermatology. Nephrology and more.
Cost: Free
Register online , call 770-333-5930, or email info@lupusga.org for more information
Illinois
World Lupus Day Symposium
Sponsor: LFA, Illinois Chapter
May 10, 4:30 p.m. - 9:30 p.m.
Union League Club of Chicago 65 W. Jackson Blvd.
Celebrate World Lupus Day with the Illinois Chapter as we gather at the World Lupus Day Symposium! The purpose of all of the LFAI's educational opportunities is to provide expert presenters on topics designed to enable Illinois' lupus community to live their best life.
Cost: Free
Register online , call 312-542-0002 or email mary@lupusil.org for more information
Please Note: Blue jeans are not allowed at the Union League Club of Chicago.
The Union League Club is accessible by public transportation. Parking is available for a fee.
Walk for Lupus Now - Southern Suburbs
Sponsor: LFA, Illinois Chapter
May 19, Registration - 9:00 a.m., Walk starts at 10:00 a.m.
203rd St & Governors Hwy, Bicentennial Park Olympia Fields, IL
Walk-a-thon raising lupus awareness and fundraising to benefit the Illinois Chapter's programs and services. Choice of 1 or 3 mile routes
Cost: $25 - adult pre-registration, $30 - adult day-of registration, $10 - Kids 12 and under (pre-registration or day of)
Register online , call 312-542-0006 or email Lena Clements at lena@lupusil.org for more information
Walk for Lupus Now - Northern Suburbs
Sponsor: LFA, Illinois Chapter
May 20, 9:00 a.m. - noon
Half Day Forest Preserve: 619 S. Milwaukee Avenue Vernon Hills, IL
Walk-a-thon to raise funds and awareness about lupus. 1 and 3 mile routes
Cost: $25 - adult pre-registration, $30 - adult day-of registration, $10 - Kids 12 and under (pre-registration or day of)
Register online , call 312-542-0006 or email Lena Clements at lena@lupusil.org for more information
Indiana
Living with Lupus: Patient Education
Sponsor: LFA, Indiana Chapter
May 17, 4:30 pm - 8:00 pm EST
IU Health North, 116th & N Meridian St, Carmel, Indiana 46032
Patient education with presentations by medical experts.
Cost: $10.00 advance registration $15.00 at door
Register online , email info@lupusindiana.org , or call 317-225-4400 for more information
Kansas
Salina Kansas Poker Run
Sponsor: LFA, Kansas Chapter
May 7 - start at 8:30 a.m., ride begins at 11:00 a.m.
Rendezvous Bar 249 N. Santa Fe, Salina
For more information, click here , email lupus@kansaslupus.org , or call 316-262-6180
Dine & Donate
Sponsor: LFA, Kansas Chapter and Il Vicinio Restaurant
May 14th and May 21st, all day
Il Vicino Restaurant, 4817 E Douglas, Wichita, KS
Dine at Il Vicino and 20% of the proceeds will be donated to the LFA, Kansas Chapter.(Valid at the 4817 E Douglas, Wichita, KS location only.)
For more information, email lupus@kansaslupus.org , or call 316-262-6180
Lupus Awareness Month Proclamation
Sponsor: LFA, Kansas Chapter
May 21
Il Vicino Restaurant, at the Douglas and Oliver location
Wichita, Kansas Mayor Carl Brewer will be giving a Proclamation announcing May as Lupus Awareness Month.
For more information, email lupus@kansaslupus.org , or call 316-262-6180
Maryland
DC Lupus Summit
Sponsor: LFA, DC/MD/VA Chapter
May 5, 9:00 a.m. - 3:30 p.m.
National 4-H Youth Conference Center - 7100 Connecticut Ave., Chevy Chase, MD
Join us for a comprehensive lupus event that provides participants with information on lupus treatment updates, tips to manage lupus, and resources to navigate one's health.
Cost: Free
Register online or email patientservices@lupusdmv.org .
Parking, metro and shuttle bus information is provided below:
Parking: Free parking will be available at the venue, with limited disabled parking available. If you will be requiring a disabled parking space, please email Amina Gilyard at agilyard@lupusdmv.org . The building is wheelchair accessible and disabled attendees can arrive at the front of the building for easy ramp access
Metro:
To National 4-H Youth Conference Center:
Take the Red Line to Friendship Heights Metro Station (towards Shady Grove) From Friendship Heights, take Metrobus L8 or Ride-On #1 to the National 4-H Youth Conference Center
From National 4-H Youth Conference Center:
Take Metrobus L7 or L8 or Ride-On #1 or #11 toward Friendship Heights (heading South on Connecticut Avenue) Follow instructions at the Friendship Heights Metro Station for points in Washington, D.C., Maryland and Virginia
Shuttle Bus
Shuttle bus service will be provided by LFA, DC/MD/VA from the Friendship Heights metro station to the Summit location starting at 8:45a.m. and running every 15 minutes until 10:00a.m.
Lupus: Learn from the Experts Series- Topic: Vivir Con Lupus
Sponsor: LFA, DC/MD/VA Chapter
May 5, 10:00 a.m.
Teleconference
Es una introducción sobre los conceptos básicos del lupus para el recién diagnosticado o cualquiera que lo necesite. La información médica precisa sobre el lupus, sus síntomas, tratamientos, y técnicas de afrontamiento.
Cost: Free
Register online, call 202-787-5380, or email patientservices@lupusdmv.org for more information
Maryland Walk Kick-Off
Sponsor: LFA, DC/MD/VA Chapter & Kelsey's Irish Pub
May 8, 11:00 a.m. - 11:00 p.m.
Irish Pub - 8480 Baltimore National Pike, Ellicott City, MD 21043
As we celebrate and prepare for the 2012 Maryland Walk for Lupus Now! Indulge in good food, conversation, and fun as we discuss plans, hand out materials and answer questions about the walk.
Cost: Free
Register online , call 202-787-5380 or email Brian Wachtel at bwachtel@lupusdmv.org .
Explaining Lupus to Your Family and Friends
Sponsor: LFA, DC/MD/VA Chapter
May 8, 6:00 p.m.
Greenbelt Baptist Church - 101 Greenhill Road, Greenbelt, MD 20770
When having lupus it can be difficult to talk to others about it, learn to share your feelings openly with your family and friends!
Cost: Free
Register online , call 202-787-5380 or email Amina Gilyard at patientservices@lupusdmv.org
World Lupus Day Awareness
Sponsor: LFA, DC/MD/VA Chapter & Urban Chic Boutique
May 10, 10:00 a.m. - 7:00 p.m.
Chic Boutique - 1626 Wisconsin Avenue, Washington, DC 20007
Urban Chic Boutique is turning purple for World Lupus Day! Come and check out the store's purple window and stop in, shop, and enjoy a dessert.
Cost: Free
Register online , call (202)787-5384 or email Brian Wachtel at bwachtel@lupusdmv.org
Lupus: Learn from the Experts Series - Topic: Living with Lupus
Sponsor: LFA, DC/MD/VA Chapter
May 15, 7:00 p.m.
Online Teleconference Webinar
An introduction to effective management and basics of lupus for the newly diagnosed or anyone who needs it. Current, medically accurate info on lupus, its symptoms, treatments, & coping techniques.
Cost: Free
Register online , call (202) 349-1163 or email patientservices@lupusdmv.org
2nd Annual Crop for Life Without Lupus
Sponsor: LFA, DC/MD/VA Chapter and Judy Janice
May 19, 9:00 a.m.
Harundale Presbyterian Church - 1020 Eastway (across from Outback), Glen Burnie, MD 21060
Join us for a fun and social day of scrapbooking. Invite all your friends, family, and fellow crafters for a day of food, raffles, door prizes, vendors, and makes & takes.
Cost: $40 and fill out 2nd Annual Crop for Life without Lupus form .
Register online , call (410) 905-8847 or email Judy Janice at jkjanis@verizon.net
Explaining Lupus to Your Friends and Family
Sponsor: LFA, DC/MD/VA Chapter
May 19, 10:30 a.m
Shady Grove Adventist Hospital Weinchel Education Center - 9901 Medical Center Drive, Rockville, MD
This workshop will help you boost your confidence and teach you how to share your lupus story with loved ones.
Cost: Free
Register online , call (202)-787-5380 or email Amina Gilyard at patientservices@lupusdmv.org
Lupus Night at Nationals Park
Sponsor: LFA, DC/MD/VA Chapter
May 19, 7:00 p.m.
Nationals Park - 1500 S. Capital Street SE Washington, D.C. 20003
Join the Lupus Foundation of America, DC/MD/VA Chapter at an exciting Lupus Awareness Month event as we celebrate a successful DC Walk and launch details of our MD Walk! The Nationals will be playing the Orioles that night, so come root for your favorite team in this rival matchup!
Cost: Lower Level - Outfield Reserved - $18; Mezzanine Level - Scoreboard Pavilion - $16
Buy tickets online , call 202-787-5384, or email bwachtel@lupusdmv.org for more information.
Minnesota
Lunch and Learn Workshop (12-1 p.m.)
It’s Lupus Awareness Day, so join the Lupus Foundation of Minnesota as Jovanka Zrnic, RN, Clinical Nurse Educator from Human Genome Sciences will be discussing lupus, recent research, diagnosis, treatment and prognosis. Lunch will be provided. Contact Cheryl at info@lupusmn.org to RSVP.
Clothing and Household Items Drive (drop-off times: 10 am to 2pm)
Don’t throw it out … Donate it to the Lupus Foundation of Minnesota’s Clothing and Household Items Drive as part of Lupus Awareness Day.
Bring your items to the Lupus Pickup Service Truck that will be at The Atrium, (home to LFM,) in the East parking lot, collecting used clothing and household goods. Proceeds support direct services to those with lupus.
Items Accepted include:
• Clothing for men, women, children and infants, plus accessories
• Small furniture
• Kitchen Items
• Housewares
• Small electrical appliances
• Toys and Games
• Bedding and Draperies
• Sporting Goods
• Books, Music, Movies
• Tools and Hardware
TAX RECEIPTS PROVIDED FOR YOUR DONATION
All items donated to the Lupus Foundation of Minnesota are deductible for income tax purposes at their present fair market value. Internal Revenue Code places the responsibility for estimating the fair market value upon the donor. For more information contact the Lupus Foundation of Minnesota at info@lupumn.org.
Check out our website calendar at www.lupusmn.org for other events in May honoring lupus awareness month.
Missouri
Behind the Mask Educational Conference
Sponsor: LFA, Heartland Chapter
May 5th 9:00 a.m. – 1:30 p.m.
Saint Louis University Medical Center
The Behind the Mask Educational Conferences are presented by the Lupus Foundation of America Heartland Chapter. These conferences bring together hundreds of people living with lupus, their families, friends, interested health professionals and experts to share the latest information to help individuals.
Cost: $10 attendance fee, includes educational sessions and lunch
Register online, call 1-800-9LUPUS6, or email info@LFAheartland.org for more information
Learn from the Experts: Vivir con Lupus Teleconference
Sponsor: LFA, Heartland Chapter
May 5, 11:00 a.m. - 12:00 p.m. CT
Introduccion al manejo efectivo de la enfermedad y lo basico de Lupus para alguien recien diagnosticado o persona que necesite.
An introduction to effective management and basics of lupus for the newly diagnosed or anyone who needs it.
To register, please call 800-958-7876 or email info@lfaheartland.org for more information.
New Jersey
Living Well with Lupus South Jersey
Sponsor: LFA, Philadelphia Tri-State Chapter
April 28, 10:00 a.m. - 12:00 p.m.
Wingate by Wyndham Hotel - 5000 Clover Road (Right off Route 73 South) Mount Laurel, NJ 08054
Our signature educational program brings together a medical expert and a panel of individuals living with lupus to discuss ways to live well or better with lupus!
Cost: Early Registration (by April 19th): $5 per person After April 19th: $10 per person
Register Online , call 866-517-5070, or email Arielle Bernstein, Community Development Coordinator at abernstein@lupustristate.org for more information.
PROGRAM SCHEDULE:
10:00 am Registration and Continental Breakfast
10:30 am Physician Presentation
11:10 am Panel Discussion
12:00 pm Closing
Please note that registration for the Living Well With Lupus South Jersey Program is limited to 50 registrants. Please register early to reserve your space!
Vivir Con Lupus: Learn from the Experts Educational Teleconference
Sponsor: LFA, Philadelphia Tri-State Chapter
May 5, 10:00 a.m. - 11:00 a.m.
Cost: Free
Register online , call 215-517-5070 for more information
LFA, Philadelphia Tri-State Chapter Living Well with Lupus Chat (Telephonic Support Group)
Sponsor: LFA, Philadelphia Tri-State Chapter
May 10, 7:30 p.m. - 8:30 p.m.
Telephone Support Group
Residents of Pennsylvania, South Jersey, and Delaware are invited to join in our monthly telephonic support group meeting.
Please register online . Toll-free dial-in information will be emailed to a few days before the call. You may also call our Chapter office at 866-517-5070 or email info@lupustristate.org to register for the Chat
Living With Lupus: Learn From the Experts Educational Teleconference
Sponsor: LFA, Philadelphia Tri-State Chapter
May 15, 7:00 p.m. - 8:00 p.m.
Teleconference
Living With Lupus: Learn from the Experts, presented by Donald Thomas, MD, FACP, FACR, CCD, is part of this series for people with lupus to learn more about successfully managing their symptoms and disease.
Cost: Free
Please register for this free event online . Toll-free dial-in information will be emailed to participants a few days before the program. For more information, please call 866-517-5070 or email info@lupus.org
Put On Purple Day!
Sponsor: LFA, Philadelphia Tri-State Chapter
May 18 all day
Turn your community purple by promoting a Put On Purple Day in your workplace, school, or community!
Download the Put On Purple Starter Kit to get more details on how you can organize a Put On Purple Event or Promotion in DE, South New Jersey, or Pennsylvania.
4th Annual Walk for Lupus Now South Jersey
Sponsor: LFA, Philadelphia Tri-State Chapter
May 20, Registration opens at 9:00 a.m., Walk begins at 10:00 a.m.
6th Street Field 6th Street at the Boardwalk Ocean City, NJ 08226
Be part of the Lupus Foundation of America's (LFA) Walk for Lupus Now and help raise critically needed funds and awareness for this unpredictable and life-threatening disease.
Register online at www.walkforlupusnowsouthjersey.org , call 302-622-8700, or email abernstein@lupustristate.org for more information.
Atlantic City Boardwalk Hall - Put On Purple
Sponsor: LFA, Philadelphia Tri-State Chapter
May 22 - May 24
The Atlantic City Boardwalk Hall in Atlantic City, NJ will be illuminated in purple.
Benjamin Franklin Bridge - Put On Purple
Sponsor: LFA, Philadelphia Tri-State Chapter
May 22 - May 24
The Benjamin Franklin Bridge between Camden, NJ and Philadelphia, PA will be illuminated purple from May 22nd - May 24th!
New York
New York Stock Exchange Closing Bell Ceremony
Sponsor: Lupus Foundation of America, Inc.
May 10, 4:00 p.m.
New York Stock Exchange
In honor of World Lupus Day, Lupus Foundation of America will ring the closing bell at the New York Stock Exchange on May 10. Please check back for photos and videos.
Walk for Lupus Now - New York City
Sponsor: Lupus Foundation of America, Inc.
May 19, 9:00 a.m.
South Street Seaport - 11 Fulton Street New York, NY 10038
Join the Lupus Foundation of America (LFA) Walk for Lupus Now® to bring us one step closer to finding a cure!
Register online, call (877) 910-9779, or email walk@lupus.org for more information
North Carolina
Butterflies Golf Tournament
Sponsor: LFA, Winston-Triad Chapter
May 5, 7:30 a.m. registration, event begins at 8:30 a.m.
Gillespie Golf Course, 306 E Florida St, Greensboro, NC
Cost: $55
Golf tournament to support individuals with lupus, their families, friends and caregivers; and to provide scholarships
Register online, call Keva Napper at 336-528-4224 for more information.
Learn from the Experts: Vivir con Lupus Teleconference
Sponsor: LFA, Piedmont Chapter
May 5, 10:00 a.m. - 11:00 a.m.
Introduccion al manejo efectivo de la enfermedad y lo basico de Lupus para alguien recien diagnosticado o persona que necesite.
An introduction to effective management and basics of lupus for the newly diagnosed or anyone who needs it.
To register, please call 877-849-8271 or email info@lupuslinks.org for more information
Walk for Lupus Now - Charlotte
Sponsor: LFA, Piedmont Chapter
May 5, Registration - 3:30 p.m., Walk - 5:00 p.m.
Symphony Park at SouthPark - 4400 Sharon Road Charlotte, NC 28211
Be part of the Lupus Foundation of America's (LFA) WALK FOR LUPUS NOW in Charlotte and help raise critically needed funds and awareness for this unpredictable and life-threatening disease.
Cost: Free
Register online, call 877-849-8271 ext. 3, or email carolyn.parsons@lupuslinks.org for more information.
Cinco de Mayo/Fanta Festival
Sponsor: Latin American Coalition
May 6, 11:00 a.m. - 7:00 p.m.
McAlpine Creek Park - 8711 Monroe Rd Charlotte, NC 28212
The 5th annual Cinco de Mayo Fanta Festival is a day-long celebration that attracts more than 30,000 people for a one-of-a-kind family festival.
Cost: Free
For more information, visit the Fanta Festival Web site or call 877-849-8271.
World Lupus Day Cocktail Party
Sponsor: LFA, Piedmont Chapter
May 10, 6:00 p.m. - 9:00 p.m.
Location: TBD
Charlotte's official World Lupus Day event to honor lupus "thrivers" globally. The evening's offerings include complimentary hors d'oeuvres, cash bar, and butterfly kisses. This event is open to anyone to attend. RSVP by Monday, May 7th.
Register online, call 877-849-8271 or email info@lupuslinks.org for more information
Learn from the Experts: Living with Lupus Teleconference
Sponsor: LFA, Piedmont Chapter
May 15, 7:00 p.m. - 8:00 p.m.
An introduction to effective management and basics of lupus for the newly diagnosed or anyone who needs it.
Register online, call 877-849-8271 or email info@lupuslinks.orgfor more information
Josh's Jog
Sponsor: LFA, Winston-Triad Chapter
May 19, 9:00 a.m.
Rich Park, Mocksville, NC
Cost: $20
5K Race community Lupus Awareness
For more information, please contact Brad Gaither at 336-768-1493 or 336-918-1525
Walk for Lupus Now - Asheville
Sponsor: LFA, Piedmont Chapter
May 20, Registration - 1:30 p.m., Walk - 3:00 p.m.
Pack Square Park Roger McGuire Green - One West Pack Square Asheville, NC 28801
Be part of the Lupus Foundation of America's (LFA) WALK FOR LUPUS NOW in Asheville and help raise critically needed funds and awareness for this unpredictable and life-threatening disease.
Cost: Free
Register online, call 877-849-8271 ext. 3, or email carolyn.parsons@lupuslinks.org for more information.
Winston-Triad Chapter Seminar
Sponsor: LFA, Winston-Triad Chapter
May 20, 2:30 p.m.
Highland Presbyterian Church Activity Building, 2381 Cloverdale Avenue, Winston-Salem, NC
Cost: Free
Lupus Education Seminar: Head of Department of Dermatology at Wake Forest University Medical Center speaking on cutaneous involvement in lupus including damaging effects of the sun and fluorescent lights
For more information or to register, please email lfawinston-t.nclf@juno.com or call 336-922-6494
WXII TV interview
Sponsor: LFA, Winston-Triad Chapter
Date: TBD
Highlighting Winston-Triad Chapter's 30 years of lupus education and awareness
For more information, please call 336-768-1493
Winston-Salem State University Lupus Presentation
Sponsor: LFA, Winston-Triad Chapter
Date: TBD
601 S Martin Luther King, Jr. Drive, Winston-Salem, NC
Lupus educational presentation to students
Cost: Free
For more information, please call 336-768-1493
Ohio
Put on Purple Event
Sponsor: LFA, Greater Ohio Chapter
May 6 - 12, 7 days 24/7
520 Vine Street Cincinnati, OH 45202
Fountain Square fountain will be lit purple May 6 -12
Cost: Free
To register, call (440) 717-0183 or email info@lupusgreaterohio.org.
Put on Purple Event
Sponsor: LFA, Greater Ohio Chapter
May 6 - 12, 7 days 24/7
429 Vine Street Cincinnati, OH 45202
Fifth Third Bank in downtown Cincinnati, Ohio to be lit purple for Lupus Awareness Month May 6-12
Cost: Free
To register, call (440) 717-0183 or email info@lupusgreaterohio.org.
Put on Purple - Building Lighting
Sponsor: LFA, Greater Ohio Chapter
May 10 - 12, 3 days 24/7
Tower City Center - 230 W. Huron Road, Cleveland, OH 44113
Terminal Tower in Cleveland, Ohio will be lit May 10 - 12.
Cost: Free
To register, call 440-717-0183 or email info@lupusgreaterohio.org.
Walk for Lupus Now - Downtown Cincinnati
Sponsor: LFA, Greater Ohio Chapter
May 12, Registration - 9:00 a.m., Walk - 10:00 a.m..
Fountain Square 520 Vine Street, Cincinnati, OH 45202
Be part of the Lupus Foundation of America's (LFA) WALK FOR LUPUS NOW in Downtown Cincinnati and help raise critically needed funds and awareness for this unpredictable and life-threatening disease.
Cost: Free
Register online, email info@lupusgreaterohio.org, or call 1-888-NO-LUPUS
Oklahoma
Lupus State Advocacy Day
Sponsor: LFA, Oklahoma Chapter
May 3, 10:30 a.m.
Oklahoma State Capital - 4th Floor Rotunda Oklahoma City, Oklahoma
The Oklahoma Chapter of the Lupus Foundation of America will address members of the Oklahoma Legislature house and senate to raise awareness of lupus.
For more information, please visit www.oklupus.org, call 405-225-7510, or email oklupus@flash.net.
Pennsylvania
Vivir Con Lupus: Learn from the Experts Educational Teleconference
Sponsor: LFA, Philadelphia Tri-State Chapter
May 5, 10:00 a.m. - 11:00 a.m.
Cost: Free
Register online, call 215-517-5070 for more information
Educational Program at the Abington Support Group Meeting
Sponsor: LFA, Philadelphia Tri-State Chapter
May 9, 7:00 p.m. - 9:00 p.m.
Abington Memorial Hospital Lenfest Building, P&G Room Keith and Old York Roads Abington, PA 19001
Cost: Free
Program Title and Topic TBA, please check back on www.lupustristate.org, call 866-517-5070 or email info@lupustristate.org for more information.
Note: Free parking passes will be distributed at the meeting for participants who park in the Zipley Garage
LFA, Philadelphia Tri-State Chapter Living Well with Lupus Chat (Telephonic Support Group)
Sponsor: LFA, Philadelphia Tri-State Chapter
May 10, 7:30 p.m. - 8:30 p.m.
Telephone Support Group
Residents of Pennsylvania, South Jersey, and Delaware are invited to join in our monthly telephonic support group meeting.
Cost: Free
Please register online . Toll-free dial-in information will be emailed to a few days before the call. You may also call our Chapter office at 866-517-5070 or email info@lupustristate.org to register for the Chat
"Inside the Lab: A Discussion of Genetics and Lupus" at the University of Pennsylvania Support Group Meeting
Sponsor: LFA, Philadelphia Tri-State Chapter
May 12, 12:00 p.m. - 2:00 p.m.
University of Pennsylvania 8th Floor Conference Room in Penn Tower - 3400 Civic Center Boulevard Philadelphia, PA 19104
Dr. Marianthi Kiriakidou will be speaking about her research on Lupus and Genetics, a usual support group meeting will follow for the 2nd hour.
Cost: Free
For more information, please call 866-517-5070 or email info@lupustristate.org
Note: Validated parking will be available in the Penn Tower Parking Garage
Living With Lupus: Learn From the Experts Educational Teleconference
Sponsor: LFA, Philadelphia Tri-State Chapter
May 15, 7:00 p.m. - 8:00 p.m.
Teleconference
Living With Lupus: Learn from the Experts, presented by Donald Thomas, MD, FACP, FACR, CCD, is part of this series for people with lupus to learn more about successfully managing their symptoms and disease.
Cost: Free
Please register for this free event online. Toll-free dial-in information will be emailed to participants a few days before the program. For more information, please call 866-517-5070 or email info@lupus.org
Put On Purple Day!
Sponsor: LFA, Philadelphia Tri-State Chapter
May 18 all day
Turn your community purple by promoting a Put On Purple Day in your workplace, school, or community!
Download the Put On Purple Starter Kit to get more details on how you can organize a Put On Purple Event or Promotion in DE, South New Jersey, or Pennsylvania.
Educational Program TBA at the Lancaster Support Group Meeting
Sponsor: LFA, Philadelphia Tri-State Chapter
May 20, 4:30 p.m. - 6:00 p.m.
Lancaster General Health Campus 2nd Floor, Conference Room #2 - 2100 Harrisburg Pike Lancaster, PA 17601
Cost: Free
Please check back on www.lupustristate.org , call 866-517-5070 or email info@lupustristate.org for more information
Benjamin Franklin Bridge - Put On Purple
Sponsor: LFA, Philadelphia Tri-State Chapter
May 22 - May 24
The Benjamin Franklin Bridge between Camden, NJ and Philadelphia, PA will be illuminated purple from May 22nd - May 24th!
PECO Crown Lights - Put On Purple
Sponsor: LFA, Philadelphia Tri-State Chapter
May 22 - May 24
The PECO Crown Lights will be displaying a lupus awareness message on their building located at 23rd and Market Streets, Philadelphia, PA.
Symphony House Condominiums - Put On Purple
Sponsor: LFA, Philadelphia Tri-State Chapter
May 22 - May 24
The Symphony House Condominiums located at 440 Avenue of the Arts, Philadelphia, PA will be illuminated in purple.
Boathouse Row - Put On Purple
Sponsor: LFA, Philadelphia Tri-State Chapter
May 22 - May 24
Boathouse Row, along the Schuylkill River in Philadelphia, PA and visible from Route 76/ Schuylkill Expressway will be illuminated purple from May 22nd - May 24th.
Educational Program TBA at the Collegeville Support Group Meeting
Sponsor: LFA, Philadelphia Tri-State Chapter
May 23, 7:00 - 8:30 p.m.
St. Eleanor's Church St. Eleanor's Rectory Meeting Room - 647 Locust Street Collegeville, PA 19426
Cost: Free
Check back on www.lupustristate.org, call 866-517,5070, or email info@lupustristate.org for more details about this program
World Lupus Day Rally
Sponsor: LFA, Philadelphia Tri-State Chapter
May 24, 12:00 p.m. - 2:00 p.m.
LOVE Park 15th Street and JFK Boulevard, Philadelphia, PA 19103
Join us for live entertainment, education and information, and giveaways, and help us make some noise for lupus!
Cost: Free
For more information, please visit our Web site, call 866-517-5070, or email info@lupustristate.org
LOVE Park Fountain - Put On Purple
Sponsor: LFA, Philadelphia Tri-State Chapter
May 24
The LOVE Park Fountain at 15th Street and JFK Boulevard, Philadelphia, PA will be flowing purple all day on Thursday, May 24th in honor of the World Lupus Day Rally.
Cira Centre - Put On Purple
Sponsor: LFA, Philadelphia Tri-State Chapter
May 24
The Cira Centre at 2929 Arch Street, Philadelphia, PA will be illuminated purple on May 24th!
Exercise and Stretching Program at the Media Support Group Meeting
Sponsor: LFA, Philadelphia Tri-State Chapter
June 2, 10:30 a.m. - 12:30 p.m.
Riddle Hospital Outpatient Pavilion, Lobby Level - 1068 Baltimore Pike, Media, PA 19063
Cost: Free
Check back on www.lupustristate.org, call 866-517,5070, or email info@lupustristate.org for more details about this program and to register
South Carolina
Support Groups will be held throughout the Month of May in the following cities. Please contact the LFA facilitators directly for more information including location and times:
Charleston/Mt. Pleasant – Alice Burress at (843) 884-3949
Myrtle Beach – Roma Chandool at (843) 651-2984
Columbia- Angie Hall at (803) 363-1965
Greenville - Darlene Biera at (864) 361-2537
Tennessee
Down the Garden Path
Sponsor: LFA, Mid-South Chapter
May 19th from 10:00 AM – 5:00 PM and May 20th from 12:00 noon – 6:00 PM
For more information, please call the chapter at 615-298-2273
Texas
Walk for Lupus Now - Houston
Sponsor: LFA, Texas Gulf Coast Chapter
May 6, 8:00 a.m.
Downtown Aquarium, 410 Bagby Street, Houston, TX 77002
Join the Lupus Foundation of America (LFA) Walk for Lupus Now® to bring us one step closer to finding a cure!
Register online, call 713-529-0126, or email info@lupustexas.org for more information.
Walk for Lupus Now - Beaumont
Sponsor: LFA, Texas Gulf Coast Chapter
May 12
Lamar University - 4400 Martin Luther King Road Beaumont, Texas 77710
Join the Lupus Foundation of America (LFA) Walk for Lupus Now® to bring us one step closer to finding a cure!
Register online, call 713-529-0126, or email info@lupustexas.org for more information.
Community Walk
Sponsor: LFA, Texas Gulf Coast Chapter + Hand in Hand for Lupus
May 19, 7:00 a.m. - 1:00 p.m.
Dunbar Middle School - 2901 23rd Street Dickinson, TX 77539
Walk and make a difference in somone's life by participating in this blessed event. There will be food and activities for the entire family
Cost: $20 for adults, kids 8 and under: free
Register online, call 713-529-0126, or email info@lupustexas.org for more information.
Harlingen 1st Community Walk
Sponsor: LFA, South Central Texas Chapter
May 19, Registration - 7:45 a.m., Walk - 8:30 a.m.
Pendleton Park, N. 17th Street, Harlingen, TX 78550
Advanced registration $25, Registration at the gate $30. Advanced and registration at the gate include a T-shirt and Raffle ticket.
For more information, please call Hermelinda Lugo at 956-320-5239 or Jorge Jimenez at 956-241-0525
Walk for Lupus Now - Weatherford
Sponsor: LFA, North Texas Chapter
May 19, 10:00 a.m. - 12:30 p.m.
Texas Pythian Home - 1825 E Bankhead Dr, Weatherford, TX 76086
Walk for Lupus Now® is the signature event of the Lupus Foundation of America, Inc.
Cost: Free
Register online or call (469) 374-0590
Pets are welcome
For more information, email info@lupus-northtexas.org or call 469-374-0590, toll free 1-866-205-2369
Utah
Walk for Lupus Now - Salt Lake City
Sponsor: LFA, Utah Chapter
May 5, Runner registration at 7:30 a.m.; Walker registration at 9:00 a.m.
Liberty Park, Salt Lake City, UT
Join the Lupus Foundation of America (LFA) Walk for Lupus Now® to bring us one step closer to finding a cure!
To register or for more information, please email the chapter at info@utahlupus.org or by phone at 801-364-0366
Educational Teleconference
Sponsor: LFA, Utah Chapter
May 26, 11:00 a.m. - 1:00 p.m.
Topic: Women's Health - Skincare & Exercise
For more information or to register, email the office at info@utahlupus.org or call 801-364-0366
Vermont
Strike One for Lupus!
Sponsor: LFA, Vermont Chapter
May 20, 1:00 p.m. - 3:00 p.m.
Champlain Lanes, Shelburne, VT
For more information or to register, please contact the chapter at 802-244-5988 or email at lupusvermont@myfairpoint.net
Virginia
Shop Diamonds & Rust in May
Sponsor: LFA, DC/MD/VA Chapter
All month during May
Online at http://shopdiamondsandrust.com/ and in-store at 39333 John Mosby Highway (Rt.50), Aldie, Virginia 20105
Diamonds & Rust, a vintage women's jewelry, clothing, accessories and collectibles shop in Aldie, VA, will donate 10 percent of all sales to LFA-DMV during the month of May using the code BUTTERFLY for sales in the shop and through Facebook!
For more information, please contact Diamond and Rust at http://www.facebook.com/thealdieshop, call 703-327-2006, or email marcia@lkyi.com
DC Lupus Summit
Sponsor: LFA, DC/MD/VA Chapter
May 5, 9:00 a.m. - 3:30 p.m.
National 4-H Youth Conference Center - 7100 Connecticut Ave., Chevy Chase, MD
Join us for a comprehensive lupus event that provides participants with information on lupus treatment updates, tips to manage lupus, and resources to navigate one's health.
Cost: Free
Register online or email patientservices@lupusdmv.org .
Parking, metro and shuttle bus information is provided below:
Parking: Free parking will be available at the venue, with limited disabled parking available. If you will be requiring a disabled parking space, please email Amina Gilyard at agilyard@lupusdmv.org . The building is wheelchair accessible and disabled attendees can arrive at the front of the building for easy ramp access
Metro:
To National 4-H Youth Conference Center:
Take the Red Line to Friendship Heights Metro Station (towards Shady Grove) From Friendship Heights, take Metrobus L8 or Ride-On #1 to the National 4-H Youth Conference Center
From National 4-H Youth Conference Center:
Take Metrobus L7 or L8 or Ride-On #1 or #11 toward Friendship Heights (heading South on Connecticut Avenue) Follow instructions at the Friendship Heights Metro Station for points in Washington, D.C., Maryland and Virginia
Shuttle Bus
Shuttle bus service will be provided by LFA, DC/MD/VA from the Friendship Heights metro station to the Summit location starting at 8:45a.m. and running every 15 minutes until 10:00a.m.
Lupus: Learn from the Experts Series- Topic: Vivir Con Lupus
Sponsor: LFA, DC/MD/VA Chapter
May 5, 10:00 a.m.
Teleconference
Es una introducción sobre los conceptos básicos del lupus para el recién diagnosticado o cualquiera que lo necesite. La información médica precisa sobre el lupus, sus síntomas, tratamientos, y técnicas de afrontamiento.
Cost: Free
Register online, call 202-787-5380, or email patientservices@lupusdmv.org for more information
World Lupus Day Awareness
Sponsor: LFA, DC/MD/VA Chapter & Urban Chic Boutique
May 10, 10:00 a.m. - 7:00 p.m.
Chic Boutique - 1626 Wisconsin Avenue, Washington, DC 20007
Urban Chic Boutique is turning purple for World Lupus Day! Come and check out the store's purple window and stop in, shop, and enjoy a dessert.
Cost: Free
Register online , call (202)787-5384 or email Brian Wachtel at bwachtel@lupusdmv.org
IRS Health Unit
Sponsor: LFA, DC/MD/VA Chapter
May 10, 10:00 a.m. - 2:00 p.m.
2800 S. Randolph St., Shirlington, VA
Join us at the IRS Health Unit, we will be providing support, information and resources for those living with lupus and their family and friends.
Cost: Free
To register, call (410) 363-3560 or email Eva Gaskins at egaskins@lupusdmv.org
Lupus: Learn from the Experts Series - Topic: Living with Lupus
Sponsor: LFA, DC/MD/VA Chapter
May 15, 7:00 p.m.
Online Teleconference Webinar
An introduction to effective management and basics of lupus for the newly diagnosed or anyone who needs it. Current, medically accurate info on lupus, its symptoms, treatments, & coping techniques.
Cost: Free
Register online , call (202) 349-1163 or email patientservices@lupusdmv.org
Lupus Night at Nationals Park
Sponsor: LFA, DC/MD/VA Chapter
May 19, 7:00 p.m.
Nationals Park - 1500 S. Capital Street SE Washington, D.C. 20003
Join the Lupus Foundation of America, DC/MD/VA Chapter at an exciting Lupus Awareness Month event as we celebrate a successful DC Walk and launch details of our MD Walk! The Nationals will be playing the Orioles that night, so come root for your favorite team in this rival matchup!
Cost: Lower Level - Outfield Reserved - $18; Mezzanine Level - Scoreboard Pavilion - $16
Buy tickets online , call 202-787-5384, or email bwachtel@lupusdmv.org for more information.
Wisconsin
Lupus Medical Symposium
Sponsor: LFA, Wisconsin Chapter
May 5, 1:00 p.m. - 3:00 p.m.
Froedtert Hospital, Milwaukee, WI
Speakers to include Christie M. Bartels, MD MS, who will speak about heart disease and lupus and Barbara D. Wilson, MD, who will speak about skin manifestations.
For more information, please contact the Chapter at 414-443-6400
State Advocacy
In addition to events by LFA and its National Network to raise awareness of lupus, the following state legislatures either have passed or are considering legislation or resolutions to raise awareness of lupus:
Arizona, Delaware, Guam, Hawaii, Kentucky, Michigan, Mississippi, Missouri, New Jersey, Ohio, South Carolina, Tenneessee, Vermont, West Virginia, Wyoming
South America
Argentina
Asociación Lupus Argentina - ALUA
Name of event : - Public Art Exhibition about Lupus
- 44º Medical Symposium Open to Community
Under the slogan: "And if is it Lupus? More you know, better you face", ALUA summons to attend next Thursday, May 10th,2012 from 7:00 a.m. to 20:00 p.m. a Public Art Exhibition about Lupus with distribution of instructional leaflets of our illness and organisation and bracelets and pins about WLD. The show will consist of a giant sculpture shaped like a butterfly (symbol of the disease in reference to one of its characteristic symptoms) and the exposure of ten murals depicting ten of the most frequent symptoms.
During the day a Power Point on the Proclamation of the WLD will be screened continuously, with images of the city of Buenos Aires and music of Astor Piazzola. From 5:00 p.m. ALUA will be hosting the 44º Medical Symposium about different aspects to Lupus especially to patients, families, medical and social workers, in a canvas tent installed in the same place,San Martin Square in Buenos Aires.
San Martin Square is the largest green pace in the neighborhood of Retiro in Buenos Aires. It was declared a National Historic Landmark in 1942. In this place we will meet to commemorate the WLD on 10 May.
- The World Lupus Day - May 10 has been declared of Interest by the Legislative Chamber of Deputies of Argentina
- We`ll send an informative e-card to friends and family with the WLD Flyer and Lupus information to people who do not have Lupus to help spread the message through the world.
- We are promoting World Lupus Day through our Facebook, too.
- We are also working hard with the media (T.V. porgrammes, radio, and newsletters.)
Date : May 10th, 20127:00 a.m. to 8:00 p.m.
Location: Buenos Aires - Argentina : San Martin Square of Buenos Aires
Website : www.alua.org.ar
Contact: info@alua.org.ar
Chile
Agrupación Lupus Chile
There will be different points of diffusion and information about Lupus and our campaing to include Lupus to a special National Health Program (Plan AUGE-GES).
These points will be in these following cities around Chile:
Arica
Viña del Mar
Valparaíso (in a stand with Red Cross)
La Florida
Maipú
San Bernardo
Rancuagua
Temuco (on May, 7th)
Also, in Santiago we'll have a special stand in the downtown to make Lupus Awareness and promote our campaing to this Plan AUGE-GES.
In that point we'll be with Senator Soledad Alvear, who is a great politician figure: she is a former Minister of Wome´s Affairs, former Minister of Justice, former Minister of Foreign Affairs, and former nominate presidential candidate.
And finally, in Valparaíso we'll be in the National Congress with a stand to make Lupus Awareness and promote Plan Auge-Ges with politicians.
We promoted a National Event to put our poster of World Lupus Day, and we had a positive answer from the people.Our people put these posters all around our country, from the North (Arica, the northest city) to the South (Punta Arenas, our southernmost city) in Hospitals, Universities, Colleges, stores, schools, drugstores, etc
Email: secretaria@agrupacionlupuschile.cl
Web site: www.agrupacionlupuschile.cl
St. Lucia
St. Lucia Arthritis and Lupus Association (SLALA)
1-Day Workshop in Vieux Fort for persons with LUPUS, their CARETAKER or FAMILY MEMBERS.
DATE: May 10th, 2012
TIME: 8:30 a.m.—1:00 p.m.
VENUE: Conference Room on the East Wing of the George Odlum Stadium
For more information, please see the
poster or contact SLALA online at http://www.slalaonline.com/

