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international lupus groups

International Lupus Groups

Find a listing of lupus patient organizations around the globe that are compiled as a resource to assist people living with lupus, their families, colleagues, and health care providers locate support and information where they live.

submit your event

Submit Your Event

Use this convenient online form to submit your event information. Please include as much detail as you wish in these descriptions. If this link does not work, you may submit your information to peters@lupus.org.


Events on World Lupus Day

ASIA: INDIA: Association of Rheumatologists of Tamilnadu- Tirunelveli

Event: NESLECON 2016 | Date: 01/05/2016 Time: 9 am to 3 pm
Location: Hotel Appletree, Vannarpettai. Tirunelveli.

One day CME on systemic features of SLE being organised to update the general physicians and specialists in 3 districts.career oriented guidance for budding Rheumatologists by Dr v Krishnamurthy. For more information: website, email or phone 0091 87541 39210.


ASIA: BANGLADESH: Lupus Foundation of Bangladesh: Dhaka

Event: Lupus Awareness Rally, Lecture, Workshop, Media Appearances and Networking | Date: 10 May 2016 and following weeks till May 31, 2016 Time: 10:00 - 1:00pm
Location: BSM Medical University and Hospital, Shahbag, Dhaka 1000.

Lecture, Workshop, Media Appearances and month-long Networking events jointly organized by the Lupus Foundation of Bangladesh (LFB), Department of Rheumatology, BSM Medical University and Bangladesh Rheumatology Society (BRS). For more information: website, email or phone 880 173 185-0812.


ASIA: INDONESIA: Yayasan Lupus Indonesia - Bundaran

Event: Walk for Lupus and Charity Music Concert "Amethyst"| Date: 05/15/2016 Time: All Day
Location: Adera, Kuntoaji, Ello Bundaran HI.

Car Free day area Walk activity for everyone who support, care and have lupus to create awareness. For more information: website, email or phone +6281295389470 and +62818145211.


ASIA: INDONESIA: Yayasan Lupus Indonesia - Jakarta

Event: Talk show Lupus and the Inauguration of Lupus Council Lab school | Date: 05/14/2016 Time: 9:00 a.m.
Location: Adera, Kuntoaji, Ello Bundaran HI.

Talk show Lupus and the Inauguration of Lupus Council Lab school. For more information: website, email or phone +6281295389470 and +62818145211.


ASIA: INDONESIA: Yayasan Lupus Indonesia - Jakarta

Event: Press Conference World Lupus Day and International Film Festival Health Science and Culture Russian Culture | Date: 05/10/2016 Time: 2:00 p.m.
Location: Adera, Kuntoaji, Ello Bundaran HI.

Selatan Press Conference about World Lupus Day 2016 and the International Film Festival that focus on health, science and culture .For more information: website, email or phone +6281295389470 and +62818145211.


ASIA: INDONESIA: Yayasan Lupus Indonesia - Java

Event: World Lupus Day (Long March and Bazaar) Car Free Day Malang | Date: 05/22/2016 Time: 10:00 a.m.
Location: Diponegoro, Jakarta.

Parahita invites people and the Lupus sufferers to gather, having a longmarch, bazaar, online campaign and crowd-funding and other offline activities in occasion of World Lupus Day (May 2016) that will be held on 22nd of May, 2016 in Car Free Day at Ijen Boulevard, Malang, (Simpang Balapang-Ijen Boulevard Street), Malang, East-Java, Indonesia For more information: website, email or phone 628 233 292-3312.


ASIA: INDONESIA: Yayasan Lupus Indonesia - Sudirman

Event: Tarakanita Walk for Lupus Grand Lucky | Date: 05/01/2016 Time: 6:00 a.m. - 9:00 a.m.
Location: Sudirman Business District.

Car Free Day area Walk activity for everyone who support, care and have lupus to create awarenessFor more information: website, email or phone +6281295389470 and +62818145211.


ASIA: INDONESIA: Care for Lupus SDF (Syamsi Dhuha Foundation)

Event: “Living Heathtily with Lupus from Medical Viewpoint” and “Learn to be Happy Living with Lupus” | Date: 7 May, 2016 Time: Call for details.
Location: Regional hospital ‘RSUP Dr. Hasan Sadikin, Bandung.'

SDF will launch “Lupus Exercise” introducing an exercise that developed to train respiration & stretching so that stiffness in joints can be relieved by doing such exercise regularly. This Lupus exercise has been tested by our Lupus friends at SDF aged between 20 and 60 years old.For more information: website, email or phone +62 22 250 2008 / +62 22 250 4050.


ASIA: INDONESIA: Care for Lupus SDF (Syamsi Dhuha Foundation)

Event: “Care for Lupus” Social Media Campaign | Date: 10 May, 2016 Time: All day
Location: Online campaign to create awareness of lupus

SDF will launch conduct outreach and awareness efforts through social media on World Lupus Day.For more information: website, email or phone +62 22 250 2008 / +62 22 250 4050.


AUSTRALIA: NEW SOUTH WALES: Autoimmune Resource & Research Centre

Event: "Back to Basics - Lupus" Seminar | Date: Contact for time Time: 9 am to 3 pm
Location: Newcaslte Ethnic Community Council, 2a Platt St Waratah NSW 2298 Australia

A/Prof Glenn Reeves (Immunologist) strips back this autoimmune illnes to current knowlege about diagnosis, treatments, management strategies and research developments. This event will be recorded. For more information: website, email or phone +61 249 214095.


AUSTRALIA: NEW SOUTH WALES: Autoimmune Resource & Research Centre (ARRC)

Event: Tamworth Cafe Conversation for WLD | Date: 10th May 2016 Time: 9 am to 3 pm
Location: Tamworth Visitors Centre, 2 The Ringers Rd Hillvue NSW 2340 Australia

A/Prof Glenn Reeves (Immunologist) strips back this autoimmune illnes to current knowlege about diagnosis, treatments, management strategies and research developments. This event will be recorded. For more information: website, email or phone +61 249 214095.


AUSTRALIA: NEW SOUTH WALES: Autoimmune Resource & Research Centre (ARRC)

Event: Lavender Lunch for World Lupus Day | Date: 10th May 2016 Time: 11:30 a.m. - 2:00 p.m.
Location: CJs On Glebe" 62 Glebe Rd, The Junction NSW 2291 Australia

Dress in purple to raise Lupus Awareness. Trivia, raffles & competitions.. For more information: website, email or phone +61 249 214095.


UNITED KINGDOM: LUPUS UK - Dorset Lupus Group

Event: Lupus Information Stand at Christchurch Hospital | Date: 10th May 2016 | Time: 04/18/2016
Location: Christchurch Hospital, Fairmile Rd, Christchurch, Dorset, BH23 2JX

Dorset Lupus Group will have an information stand at the hospital to raise awareness of the condition. If you'd like some information or to chat to people with experience of living with lupus, please come along. For more information: website, email.


UNITED KINGDOM: LUPUS UK - Dorset Lupus Group

Event: Lupus Information Stand at Dorchester County Hospital | Date: 10th May 2016 | Time: 04/18/2016
Location: Dorchester County Hospital, Williams Avenue, Dorchester, Dorset, DT1 2JY

Dorset Lupus Group will have an information stand at the hospital to raise awareness of the condition. If you'd like some information or to chat to people with experience of living with lupus, please come along. For more information: website, email.


UNITED KINGDOM: LUPUS UK

Event: World Lupus Day Coffee Morning | Date: Throughout May
Location: Anywhere

Host a coffee morning with family & friends or at your workplace to raise awareness and funds. Contact LUPUS UK for a World Lupus Day Coffee Morning pack. For more information: website, email or phone 01708 731251.


UNITED KINGDOM: LUPUS UK

Event: Go That Extra Mile - London | Date: 14th May 2016Time: 1:30pm
Location: Trafalgar Square, London

A sponsored walk through the historical centre of London. For More Information: website, email or phone 01708 731251


UNITED KINGDOM: LUPUS UK

Event: Strathclyde Lupus Information Day | Date: 7th May 2016 Time: 1.30pm
Location: Glasgow City Hotel, Cambridge Street, Glasgow G2 3HN

An event featuring expert speakers discussing a variety of 'lupus-related' topics. For more information: website, email or phone 01708 731251.


UNITED KINGDOM: LUPUS UK

Event: Patient Information Day | Date: 10th May 2016Time: All day
Location: Queen Elizabeth Hospital, Birmingham, UK

Eminent consultants talk about different aspects of lupus. For more information: website, email or phone 01708 731251


LITHUANIA: Paramos klubas Lupus.lt

Event: Annual lupus day meeting | Date: 7th May 2016Time: 12
Location: Innovative Medical center, Santariškių g. 5, LT-08406, Vilnius,

Meeting and discussions with leading reumatologists, mental health doctors. Party will finalise it. For more information: website, email or phone +37069984518, +37069821858


EUROPE: DENMARK: SLE/lupus DK

Event:Vov pelsen (dare to be active) | Date: 21st May 2016 Time: 10.30-17.00 CET
Location: Handicare, Baggeskærvej 48, 7400 Herning, Denmark

Meeting and discussions with leading reumatologists, mental health doctors. Party will finalise it. For more information: website, email or phone (+45) 22431979


EUROPE: SPAIN

Event: Lupus Awareness Activities | Date: 1 May - June 30 Time: Times vary
Location: Various locations throughout Spain

Many events are planned to be held in Spain and South America to raise awareness of lupus. Download a PDF document that contains information about these events. For more information: website, or phone 91 825 11 98


EUROPE: SPAIN: Asturias

Event:NATIONAL CONGRESS OF LUPUS (ASTURIAS) SPAIN | Date: 21st May 2016 Time: 9:00 a.m. - 8:00 p.m.
Location: Palacio de Congresos Principe Felipe Oviedo, Asturias Spain

Event where patients and meet to have the best information lupus all presentations are given by leading experts in EAS. For more information: website, email or phone 91 825 11 98 (FELUPUS), 985 08 95 56 (ALAS)


EUROPE: SPAIN: CATALAN ASSOCIATION LUPUS E. G.

Event:Working day lupus unlimited | Date: 10 May 2016 Time: 6:00 p.m. - 8:00 p.m.
Location: Clinic and Hospital

Day for lupus patients to have conferences medical specialists For more information: website, email or phone (62) 689-1221


EUROPE: SPAIN: Galicia: Asociación Galega de Lupus

Event:Galicia Information desks | Date: May 7th, 8th, 9th and 10th Time: 10:00 to 20:00
Location: Galicia

We'll have informations points in lots of cities in Galicia. In some we will have other activities like flashmobs, bouncy castles, etc. For more information: website, email or phone +34 981240072


EUROPE: SPAIN: Galicia: Asociación Galega de Lupus

Event:All Galicia will shine in purple | Date: May 10th Time: after 20:00
Location: Famous monuments in Galicia

Different monuments all over Galicia will shine in purple: A Coruña, Roman wall in Lugo, As Burgas in Ourense .... For more information: website, email or phone +34 981240072


EUROPE: SPAIN: Galicia: Asociación Galega de Lupus

Event:Galicia Coping with Lupus"in Riveira | Date: May 4th Time: 8:00 p.m.
Location: Cultural Center Manuel Lustres Rivas in Riveira

Three specialists talk about lupus. MD Manuel Pombo (rheumatologist) , Mr Arangude (nurse) and Mrs Lorena Afonso (nutriotionist) For more information: website, email or phone +34 981240072


EUROPE: SPAIN: Galicia: Asociación Galega de Lupus

Event:Galicia Light house Torre de Hércules will shine in purple | Date: May 10th Time: after 20:00
Location: A Coruña

The active oldest roman light house Torre Hércules will shine in purple. It will be a flashmob. For more information: website, email or phone +34 981240072


EUROPE: SPAIN: Madrid, Asociación Lúpicos Solidarios de Madrid

Event:Reading of World Lupus Day declaration | Date: May 9th Time: 11:00 a.m.
Location: Torrejon de Ardoz City Hall

The Mayor will read the declaration in City Council General Assembly For more information: website, email or phone +(34) 60-929-2993


EUROPE: SPAIN: Madrid, Asociación Lúpicos Solidarios de Madrid

Event:Reading of World Lupus Day declaration City Hall | Date: May 10th Time: 11:00 a.m.
Location: Las Rozas de Madrid, Madrid, Spain

The Mayor will read the declaration in City Council General Assembly For more information: website, email or phone +(34) 60-929-2993


EUROPE: SPAIN: Madrid, Asociación Lúpicos Solidarios de Madrid

Event:Lighting in purple of Caja del Arte (Municipal Scenic Arts Centre) | Date: May 8th -10th Time: From dusk to dawn
Location: Joaquin Blume Str. corner with Eos Str. Torrejon de Ardoz, Spain

Lighting in purple of main building of the City Arts Center For more information: website, email or phone +(34) 60-929-2993


EUROPE: SPAIN: Madrid, Asociación Lúpicos Solidarios de Madrid

Event: Lighting in purple of City Hall | Date: May 8th -10th Time: From dusk to dawn
Location: Plaza Mayor, Las Rozas de Madrid, Madrid, Spain

The main building will be lit in purple. For more information: website, email or phone +(34) 60-929-2993


EUROPE: SPAIN: Madrid, Asociación Lúpicos Solidarios de Madrid

Event: Lighting in purple of City Hall | Date: May 8th -10th Time: From dusk to dawn
Location: Plaza Mayor, Las Rozas de Madrid, Madrid, Spain

The main building will be lit in purple. For more information: website, email or phone +(34) 60-929-2993


EUROPE: SPAIN: Madrid, Asociación Lúpicos Solidarios de Madrid

Event: Information table | Date: May 10th Time: 10:30 a.m. 02:00 p.m.
Location: Plaza Mayor, Las Rozas de Madrid, Madrid, Spain

A desk with posters, fliers, giveaways, etc. on lupus. For more information: website, email or phone +(34) 60-929-2993


EUROPE: SPAIN: Madrid, Asociación Lúpicos Solidarios de Madrid

Event: Information table | Date: May 10th Time: 10:30 a.m. 02:00 p.m.
Location: Plaza Mayor, Las Rozas de Madrid, Madrid, Spain

A desk with posters, fliers, giveaways, etc. on lupus. For more information: website, email or phone +(34) 60-929-2993


EUROPE: SPAIN: Madrid, Asociación Lúpicos Solidarios de Madrid

Event: Information table | Date: May 9th Time: 10:30 a.m. 02:00 p.m.
Location: Plaza Mayor, Torrejon de Ardoz, Madrid, Spain

A desk with posters, fliers, giveaways, etc. on lupus. For more information: website, email or phone +(34) 60-929-2993


EUROPE: SPAIN: La Asociación Leonesa de Lupus y Síndrome Antifosfolípido (ALELYSA)

Event: World Lupus Day Observance Date: May 10th Time: All Day
Location: Leon

ALELYSA conducts activities to observe World Lupus Day. For more information: website


EUROPE: SWEDEN: Stockholm, The Swedish Rheumatism Association, SLE Mil Sverige Facebook group and Stockholms Reumatism Organisation.

Event: SLE-Day Sweden | Date: May 10 th Time: 14.30-18.30 Seminar and lectures 19:00 Dinner, Facebook group SLE Mil Sverige
Location: Katarinasalen, Pumpan, Färgargårdstorget 1, Stockholm

The day starts with a seminar with people with lupus discussing their experiences. Then lectures with Christopher Sjöwall, rheumatologist and Claudia Lennartsson, fysiotherapist. There will also be a dinner held at a restaurant (for the dinner you have to pay yourself). For more information: email


EUROPE: THE NETHERLANDS: Jaarbeurs Utrecht, NVLE, Lupus Nederland

Event: Wereld Lupus Dag 2016 | Date: May 21th Time: 10.30 - 17.00 hrs
Location: Reuma Fonds

Congres on Lupus and APS. For more information: website, email or phone 003188- 0157000


NORTH AMERICA: CANADA: Lupus Ontario

Event: Light the Night in Red and White CN TOWER | Date: 10 May 2016 Time: 8 PM
Location: CN Tower

For more information: website, email or phone 905-415-1099


NORTH AMERICA: UNITED STATES: Lupus Foundation of America-Florida Chapter

Event: WALK TO END LUPUS NOW - Orlando, FL Date: 21st May 2016 Time: 3-5PM Expo; 5PM walk ceremony; 5:30PM walk around Lake Eola (1.5 miles)
Location: LAKE EOLA PARK (Downtown Orlando): 512 E. Washington St. Orlando, FL 32801 (at the Orlando Farmers Market shaded site)

Meeting and discussions with leading reumatologists, mental health doctors. Party will finalise it. For more information: website, email or phone 407-721-03918


NORTH AMERICA: UNITED STATES: Lupus Foundation of America | California Office

Event: WALK TO END LUPUS NOW - San Diego Date: 14th May 2016 Time: 4 PM Registration; 5PM walk ceremony; 5:30PM walk begins
Location: NTC Park, 2455 Cushing Rd, San Diego, CA 92106

When you take part in a Lupus Foundation of America's Walk to End Lupus Now™, you experience firsthand the power of the movement to end lupus. Join us in San Diego to raise money for lupus research, increase awareness of lupus, and rally public support for the estimated 1.5 million Americans who suffer from its brutal impact. For more information: website, email or phone 310-617-2835


NORTH AMERICA: UNITED STATES: Lupus Foundation of America | California Office

Event: Dining out with Chili's - San Diego Date: May 10th, 2016 Time: 11am - 10pm
Location: Mira Mesa Chili's, 5969 Lusk Blvd., San Diego, CA 92121

Let Chili's do the cooking and support the Lupus Foundation of America at the same time. With each flyer presented on May 10th, 2016, Chili's will donate 15% of the event day sales back to the Lupus Foundation of America. For more information: website, email or phone 310-617-2835


NORTH AMERICA: UNITED STATES: Cassie A Lupus Survivor

Event: We are Surviving Lupus Date: May 10th, 2016 Time: 11am - 10pm
Location: Jefferson Elementary School 1110 Tucker Ave Sanger CA 93657

I am 25 years old i use a walker and am currently battling lupus and i and my family want to wear purple and distribute lupus awareness fliers with a purple cupcake to educate people on what we struggle with day to day. i get lots of criticism where i live in sanger ca and would like people to know about my disease rather than judge me for my illness For more information: phone (559) 546-9893


SOUTH AMERICA AMERICA: WEST INDIES: LUPUS ANTILLES-GUYANE

Event:LUPUS, AUTO-IMMUNITE, NUTRITION ET MIEUX ETRE INSTITUT MARTINIQUAIS DU SPORT - LE LAMENTIN | Date: 14 May 2016 Time: 9H00-16H30
Location: CN Tower

Conférence-débat avec des médecins et spécialistes de la nutrition. For more information: website, email or phone (69) 645-3539


SOUTH AMERICA AMERICA: BOLIVA: Asociación Boliviana de LUPUS "ASBOLUP" - LUPUS Bolivia

Event:III Congreso de LUPUS para pacientes y profesionales en Salud | Date: 6 May 2016 Time: 17:00 a 21:30
Location: Auditorio Camara Nacional de Comercio Edf. Camara Nacional de Comercio piso 1 Av. Mcl Santa Cruz esq. Colombia

Como primer Objetivo que el Congreso es brindar mayor información a los pacientes y Familaires con LUPUS sobre las afecciones y cuidados que se debe tener. Como segundo Objetivo es sensibilizar sobre este temas y actualizar información a los profesionales en salud. For more information: website, Facebook, email or phone 591-70611878


SOUTH AMERICA AMERICA: BOLIVA: Asociación Boliviana de LUPUS "ASBOLUP" - LUPUS Bolivia

Event:II Feria Conversado sobre el LUPUS | Date: 8 May 2016 Time: 09:00 a 13:30
Location: Paseo el Prado

Los pacientes con LUPUS y familiares conversando con la Gente - sensibilizar y visibilizar el LUPUS For more information: website, Facebook, email or phone 591-70611878


SOUTH AMERICA AMERICA: NICARAGUA: Asociación Nicaragüense Pro Lupus Eritematoso (ASONILE)

Event:"Ganémosle la Carrera al Lupus" | Date: Domingo 8 de Mayo 2016 Time: 6 de la mañana
Location: Centro Comercial Metrocentro

LEvento de Recaudación de Fondos For more information: email or phone 505-2248-5641


SOUTH AMERICA AMERICA: PERU: Asociación Peruana de Lupus

Event:Día Mundial del Lupus | Date: 10 de mayo 2016 Time: 6 de la mañana
Location: Rey de Bahamonde 121, Lima 33, Perú

Charla informativa sobre el lupus, dirigida a los pacientes y sus familiares, con la intervención de médicos reumatólogos y psicólogos. For more information: website,email or phone 51-1-795 0304


We encourage lupus patients, their families, friends, co-workers, and health care providers to distribute it in your community.
Download full page version | Download half page version

Use this simple check-list that has been designed to help people recognize the symptoms and risk factors for lupus. Download

World Lupus Day logo with May 10 date (black & white and color versions)
World Lupus Day logo without date (black & white and color versions)

Let media and your community know about your event.
Download press release | Media letter (modify where needed).